Alright round two is in the books – lets see the results! SYMPTOMS REGION #1 Coughing 87.1% – #8 Dehydration 12.9% #5 Malabsorption 48.9% – #13 Stomach Pain 51.1% #6 Distended Stomach 56.9% – #3 Fevers 43.1% #7 Fatigue/Difficulty Sleeping 68.8% – #2 Gassiness 31.2& TREATMENTS REGION #1 Daily Treatments 68.6% – #8 PICC Placements...
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Round 2 is here! We’re starting to get into the territory where just about all of this sucks… or the vast majority of us living with CF actually deal with most of the issues within the remaining teams one way or another. For the most part, one-off issues that patients may or may not deal...
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The results are in! Here’s the breakdown from the first round: SYMPTOMS REGION #1 Coughing 87.2% – #16 Barrel Chest 12.8% #8 (Dehydration) 53% – #9 Loss of Appetite 47% #5 Malabsorption (Diarrhea) 73% – #12 CF laugh 27% #4 Obstruction (Constipation) 41.1% – #13 stomach pain 58.9% #6 Distended Stomach 74.8% – #11 CF...
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It’s time to ROCK THE VOTE to answer the question, “What is the most ANNOYING part of living with cystic fibrosis?” Voting begins today. Here’s how it’s going to work… Below you will see TWO Google forms. The first will contain “games” from the SYMPTOMS and TREATMENTS regions, and the other will have “games” from...
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Make this Giving Tuesday count with a donation to the Boomer Esiason Foundation, or as we like to say, #FightCFwithBEF. Here’s a quick look at some of our programs and how they have evolved over the past few years: Team Boomer Team Boomer is a program that: encourages people with cystic fibrosis to incorporate exercise...
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For some reason it seems like good news is few and far between these days. We really do need some positivity, including me. I’ve been with annoying recurring health issues since May – really just a bad bounce, nothing more – but they pale in comparison to some of the larger problems that CF families have been...
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Update 9/8/17 3:45pm: A huge THANK YOU to everyone who has donated so far. We’ve come a long way since we started the Hurricane Harvey Cystic Fibrosis Relief Fund last week. Thanks to your generous contributions we are putting the finishing touches on sending out our 2nd shipment to Houston today! I just got word from...
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