I don’t always blog on Saturday, but when I do it’s because I have something I need to get off my chest. This week, the CDC provided guidance to state and federal policymakers that fully vaccinated people (two weeks after their final shot) can do just about everything they did before the pandemic without needing...
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I disclose my cystic fibrosis every time I fly. Of course, I have not flown since COVID-19 shut down the world, so I guess it would make more sense to say that I used to disclose my cystic fibrosis every time I got on an airplane in the before times. I will continue to do...
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I got my second Moderna vaccine dose over the weekend, and finally after a long year I am breathing a sigh of relief. If my experience this past weekend is representative of the nation at large, the demand for vaccines is still quite high. The clinic was packed wall to wall with vaccine recipients and...
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This past Saturday I got the call saying I could come off a COVID-19 vaccine wait list if I hustled down to a local vaccine clinic. I had nothing else going on (read: I have had anything else going on since last March) so I hopped in the car to get my vaccine. It was...
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I will be the first to admit that I have pandemic fatigue. I miss having a beer after hockey with my teammates, I miss going to class, and I miss freely going to the grocery store without having to orchestrate some massive plan. I also miss the days when working hours wouldn’t blend into time...
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This written interview was completed by Catya Kurban, a young woman living with cystic fibrosis who recently completed her masters in science (Child Life and Family Centered Care). She is a patient-facing healthcare worker. 1) why did you get the vaccine? I recently graduated with my masters in science studying Child Life and Family Centered...
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This post was written by Megan DiBenedetto. She is 28 with cystic fibrosis from the New York City area and is a practicing nurse at NYU Langone Health. I’m 28 years old with cystic fibrosis and I’m a bone marrow transplant nurse for NYU Langone Health, a New York City area hospital system. I received...
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