I got an interesting question from the audience at my CF Family Education Day talk last weekend – “What roles do your parents play in your fight against CF now that you’re an adult?” The short answer is that both of my parents are still very involved. My mom remains my first line caregiver in...
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So some good news – I came off IV’s yesterday. It looks like I will be free to enjoy the rest of my summer. Coincidentally, I’ve gotten a few questions about how I am able to manage my time while I’m on IV. So I figured we can tackle that topic in a blog post...
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Ever since I mentioned my alcohol intake in the Diet blog post a couple week ago, talked about my feeding tube beer funnel on the PodFathers Barstool Sports podcast and reposted my 7 Summer Tips blog post, I’ve gotten a number of emails asking about the evolution of my feelings towards social drinking. To that...
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Earlier this week I got an email from a reader asking me whether or not I adhere to a diet plan, and if so, what does it look like? If you know me personally, you know I am anything but a foodie – I have the palate of a 6 year old and I’m really pretty...
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I got a question from a reader not too long ago that asked: “What do you do when you are just so sick and fed up of being sick?” Sick of being sick, isn’t that a hell of a thing? Well it’s true. I don’t care how resilient or tough you are, this feeling is...
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**Please be advised: do not consider anything in this blog official medical advice. Medical advice can only be given by a certified medical physician. The contributors on this blog may not be held responsible for any damage that may result from using the information in this blog without permission from a medical doctor. I have...
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**Please be advised: do not consider anything in this blog official medical advice. Medical advice can only be given by a certified medical physician. The contributors on this blog may not be held responsible for any damage that may result from using the information in this blog without permission from a medical doctor. I was...
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