My Patient Advocacy.

My family’s crusade against cystic fibrosis started in the early 90s, and together, with thousands of other CF families, we have all played a small role in shaping the future of the condition. Sometimes our efforts show up in the public eye. We’re proud that we can give a loud voice to people living with cystic fibrosis and other rare diseases.


Real Sports with Bryant Gumbel


New York, Ny.

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*Nothing contained in these blog posts, podcasts, images, or any other posts should be considered medical advice. Such advice can only be given by a physician who is experienced with cystic fibrosis. The contributors on this blog/podcast cannot be held responsible for any damage which may result from using the information on this blog/podcast without permission of their medical doctor. Furthermore, the views expressed on this blog are solely those of the contributors and do not represent the views or opinions of the writer's employer(s) unless explicitly mentioned.