I am a Dad!

What a surreal couple of days! Darcy safely delivered our baby boy, Kaspar Fitzwilliam Esiason, into the world, and when it happened, we both couldn’t stop crying. The rush of emotion was like nothing I have ever felt, and I’m not sure I even have an adequate vocabulary to describe it all. Both Darcy and...
Continue reading...

Two Years Without a Pulmonary Exacerbation

It feels funny writing about this. Maybe it’s my new normal – hopefully it is! Last year I wrote about hitting the one year free of a pulmonary exacerbation milestone. It was the second time I hit it since starting Trikfata (the first came during the clinical trial, but was separated from the second time...
Continue reading...