It’s been a little while since I last blogged – I guess I should have expected that after the baby came home! One of the first weird questions we ran into after the baby came home from the hospital was whether or not I could do treatments in the same room as him. I, of...
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What a surreal couple of days! Darcy safely delivered our baby boy, Kaspar Fitzwilliam Esiason, into the world, and when it happened, we both couldn’t stop crying. The rush of emotion was like nothing I have ever felt, and I’m not sure I even have an adequate vocabulary to describe it all. Both Darcy and...
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I am about the same age today as when my parents welcomed me into the world. Though, as I am told, my first few years weren’t all sunshine and rainbows. I suffered from different ailments throughout my early infant years. The most common issue was an incessant ear infection, or so everyone thought. Often my...
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It feels funny writing about this. Maybe it’s my new normal – hopefully it is! Last year I wrote about hitting the one year free of a pulmonary exacerbation milestone. It was the second time I hit it since starting Trikfata (the first came during the clinical trial, but was separated from the second time...
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With each day that goes by, it feels like we are heading straight towards the next chapter of our lives together. Darcy and I have officially started transforming one of the rooms in our home into a nursey (catch my DIY projects on Instagram). My clothes are getting moved out of the closet this week,...
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Darcy and I really appreciate all the kind comments and messages we have received after sharing one half of the CF IVF journey on the blog. As promised, Darcy will soon take to the blog to talk about everything she had to go through leading up to the process, during, and now after. People seem...
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I never thought I’d be writing about my nuts on the blog, but here we are. If you want to stop reading, I’ll give you the out and tell you the whole thing… was not THAT bad. But I am going to detail my encounters with the medical system for the male side of the...
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