I often get asked, “How do you stay so motivated?” The answer is always the same, my health. My health is my ultimate motivator. I can do the things I want to do when I’m healthy, and I can’t do the things I want to do when I am sick. Simple enough, right? The answer...
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It’s been awhile since we have talked about the importance of the Americans with Disabilities Act, how we can invoke it and why it is so important we preserve its purpose. College Admissions Scandal Exploits Disabilities The big story barreling through the news cycle is the so-called college admissions scandal where a number of people,...
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UPDATE (3/12/19) 4:30PM: The “video” advertisement discussed below, which was regrammed to @Breathe_In_Pod, was reported and then subsequently removed from Instagram. It’s a real shame because there was a constructive discourse in the comment sections between people living with cystic fibrosis. We’ve also been made aware some influencers commented apologies on the posts in question,...
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It was 2009. I was on my own for the very first time in my life as a freshman at Boston College. The natural growing pains of learning how to cope with cystic fibrosis in a place away from home were…complex. I had to learn how to develop a routine, and stick to it. I...
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It’s a holiday today, (which… does anyone else think it’s kind of weird that we celebrate the executive office of the federal government, especially since our entire existence as a nation is predicated on the idea that no single person should wield too much power?), so that means you get a quick Monday Morning thoughts....
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Monday Morning Thoughts: A Kind Message to the Anti-Vaxxer Movement Responsible for the Latest Measles Outbreak
What a time to be alive! Extinct illnesses are BACK. What a time to be alive, indeed. In fact, it’s quite depressing that here we are, discussing the selfishness of people who refuse to vaccinate their kids in response to a mythical fear. It’s equally depressing for all of us to feel the need to...
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Happy #FeedingTubeAwarenessWeek to all my tubies out there! Whenever I write about my feeding tube, I generally talk about how amazing it has been for me. My g-tube has helped me accomplish so much, and for that reason it’s always easy to write about. I want to kick off Feeding Tube Awareness Week with something...
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