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Family Building Friday: The Corr Family – Two Children with CF

  • 17. May. 2019
  • /
  • Family Building Fridays

I was one of those children who when asked what they wanted to be when they grew up said a mommy. I wanted three children from pretty much day one. When I had my second baby I couldn’t have been happier. I remember so clearly nearly 25 years ago now walking down the street with...
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Family Building Friday: The Randazzo-Parrott Family, Pregnancy and CFTR Modulators

  • 29. Mar. 2019
  • /
  • Family Building Fridays, Guest Column

I always hoped I would become a mother one day but never allowed myself to get my hopes up in fear of it not happening. When I was six years old my parents received the diagnosis that both of my younger brothers and I had cystic fibrosis. Our lives changed forever as we entered the...
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Family Building Friday: The Woodruff Family, Surrogacy

  • 08. Mar. 2019
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  • Family Building Fridays, Guest Column

John and I met in 1990. Yes, 1990, in Ms. Hairston’s kindergarten class. After one year of school together, I switched schools and we wound up in different grades. I remember seeing John around town, but we never spoke again until after college in a NYC bar where he came over to talk to me....
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Family Building Friday: The Albright Family, Adoption

  • 01. Mar. 2019
  • /
  • Family Building Fridays, Guest Column

It was very clear to me early on that I wanted to be a father. The imprint was so strong that when I was diagnosed with CF at 15 my most salient concern was not that I had just found out that I had a shorter life span, but that I couldn’t have children. When...
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Family Building Friday: The Carfora Family, Surrogacy, IVF/PGD

  • 22. Feb. 2019
  • /
  • Family Building Fridays, Guest Column

My husband, Jimmy, and I knew that we wanted to have children very early into our relationship and discussed how our family would come to existence at length. I have cystic fibrosis and I was four years post bilateral lung transplant when Jimmy and I started dating. Quickly into our relationship, I experienced some serious...
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Family Building Friday: The Walker Family, Pregnancy and CF

  • 15. Feb. 2019
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  • Family Building Fridays, Guest Column

Adam and I met the summer before my freshman year in high school and briefly dated for a few months that fall. We ended up breaking up but remained friends throughout the years. When I graduated from high school we crossed paths and started to date again and 6 years later Adam proposed and we...
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Family Building Friday: The Neville Family, IVF/PGD

  • 08. Feb. 2019
  • /
  • Family Building Fridays, Guest Column

Megan Neville takes us through the IVF/PGD process. Our firstborn son Aidan was diagnosed with CF through newborn screening at 8 days old. The initial shock and devastation was overwhelming. I could not believe that this perfect looking baby we created out of love was facing this awful disease. As we learned the realities of...
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G17Esiason

Saved by science 🧬 Patient advocate 🫁 Dad 👶🏻🐶 MPH‘22 @Dartmouth🌲 Tuck MBA 🌲 BC '13 🦅 #cysticfibrosis

Hanover, NH

Jan 31 12:00

RT @CCHMCArchives: The ceremonies were attended by families with children affected by cystic fibrosis, and ex-Bengals teammates such as Ant…

Reply
Jan 31 12:00

RT @CCHMCArchives: This was the 1st installment of a pledge of $1.6 million to support clinical & basic research programs @CincyChildrens.…

Reply
Jan 31 12:00

RT @CCHMCArchives: #throwbackthursday Clinic dedicated in honor of Gunnar Esiason, May 19, 1995. Boomer Esiason & his son Gunnar presented…

Reply
Jan 31 12:00

RT @BosBizJournal: Boston-area biotechs are working to fight antimicrobial resistance. Time — and funding — is running out. https://t.co/o…

Reply

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2022 Reading List

Alexander the Great - Anthony Everitt
Leonardo da Vinci - Walter Isaacson
Priced Out - Uwe Reinhardt
The Winter Army - Maurice Isserman
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Latest Podcasts

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  • State of Health Episode 22: Pharmacy Benefit Managers (PBMs) and Their Hidden Role in Drug Pricing November 10, 2021
  • State of Health Episode 21: Antibiotic Resistance: How CARB-X Helps New Companies Get a Running Start October 13, 2021

Latest CF Around the World Blogs

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  • Cystic Fibrosis Around the World: Morocco January 6, 2021
  • Cystic Fibrosis Around the World: Turkey September 30, 2020

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MEDICAL DISCLAIMER

*Nothing on these CF blog posts and podcasts should be considered medical advice. Such advice can only be given by a physician who is experienced with cystic fibrosis. The contributors on this blog/podcast cannot be held responsible for any damage which may result from using the information on this blog/podcast without permission of their medical doctor.

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By submitting this form, you are granting: Boomer Esiason Foundation, 483 10th Avenue, New York, New York, 10018, United States, http://www.esiason.org permission to email you. You may unsubscribe via the link found at the bottom of every email. (See our Email Privacy Policy for details.) Emails are serviced by Constant Contact.

MEDICAL DISCLAIMER
*Nothing on these CF blog posts and podcasts should be considered medical advice. Such advice can only be given by a physician who is experienced with cystic fibrosis. The contributors on this blog/podcast cannot be held responsible for any damage which may result from using the information on this blog/podcast without permission of their medical doctor.

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