Salt in My Soul, the documentary version, is something special. If you’ve followed the blog for a long time, you know I loved the book. In fact, Darcy and I had a passage from Salt in My Soul read aloud at our wedding: My life is a miracle. Life in general is a miracle. Our...
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It’s been awhile since I’ve blogged! My move to grad school is coming (14 days, but who is counting?), so my mind has been elsewhere, but today, I’m back! Darcy sent me a link this morning to a blog post written by Tiffany Jenkins. She is the author of a popular new book that she...
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This past weekend I was honored to deliver the 2019 St. Louis University School of Medicine Pre-Commencement address. My very first pediatric doctor at Cincinnati Children’s Hospital, Robert Wilmott MD, is now the acting dean at the SLU School of Medicine and extended the invite to me not long ago. I so very much appreciate...
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If you remember way back (like a year and a half ago) I did the Couch-to-5k running program to improve my airway clearance. I hated running, but I did it anyway because I wanted to feel better! I wrote about it to keep it me consistent, and because I wanted to invite YOU to join...
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I often get asked, “How do you stay so motivated?” The answer is always the same, my health. My health is my ultimate motivator. I can do the things I want to do when I’m healthy, and I can’t do the things I want to do when I am sick. Simple enough, right? The answer...
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It was 2009. I was on my own for the very first time in my life as a freshman at Boston College. The natural growing pains of learning how to cope with cystic fibrosis in a place away from home were…complex. I had to learn how to develop a routine, and stick to it. I...
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A couple weeks ago I wrote about making it through a calendar year without needing to go on IVs for the first time in close to 15 years. Well… that streak was snapped a few days later. No, I didn’t jinx it and no I didn’t bring it upon myself. I had been fighting a...
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