Monday was a holiday, so we’re talking about my Tuesday morning thoughts… Global Genes I was in California for the past week, which you’ll hopefully see as my reason for not blogging much. We’re a small time operation here. I can only do so much at once! I had the chance to join the Global...
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The past five weeks have been crazy. I have another week and a half to go. To put it another way, I have spent a lot of time outside New York. Since the last week of August I have been to Pennsylvania, Maryland (twice), Delaware, New Jersey, Massachusetts, Tennessee and North Carolina. I’m about to...
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I had a great tip to Knoxville and Eastern Tennessee Children’s Hospital over the weekend. I love learning from CF families all over the country. G-Tube Stigma One thing I learned from the CF Family Day at ETCH is that the stigma around g-tubes still exists. The g-tube is a visual indication of illness, being...
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Lots of important information to start off your week, so pay attention! My Visit to CFF Believe it or not, prior to last Friday I had only ever been to a Cystic Fibrosis Foundation event once or twice in my life – a golf outing hosted by a family friend. It makes sense, we sort...
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We skipped Monday Morning Thoughts last week (because… Labor Day, duh), but we’re back! It’s Monday, the NFL is off to a hell of a start, but we’ll get to that in a moment. Let’s begin with some cystic fibrosis stuff (after all this is a CF-focused blog). How Many CF Clinics Have You Been...
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I’m away this week… the final week of Summer! Thank God for the auto blog-posting feature. We’re going to look at some CF nuisances in today’s blog. Sterilizing My go to technique for sterilizing nebs is to use a microwave baby bottle sterilizer. My thought process behind this is that if a company is making...
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If you can’t tell… I watched a lot of TV over the weekend, and now this is where we are. Netflix’s ‘Afflicted’ Doesn’t Do Justice to Chronic Illness If you listened to last week’s podcast, you heard our guest, Katie, recommend that I watch Afflicted, a new series on Netflix (see the link for the trailer)....
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