Common Sense: Chronic Illness Version

As I’ve gotten older (and seemingly wiser), I’ve come to realize that certain things are common sense as they relate to living with a chronic illness. It has gotten to the point where I take them for granted – I know this because from time to time I’ll drop in on cystic fibrosis Facebook communities,...
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My Wish List for the New Year

I’m not naïve enough to think that I’m going to wake up tomorrow and find that my life is moving forward with cystic fibrosis in the rearview mirror. We’re still a little bit away from that moment, but that doesn’t mean I don’t have high expectations for treatment development. In many ways, my life with...
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My 2016 Holiday Gift Guide

Christmas is just around the corner, so it is time to start working on those lists to send to Santa! Here’s my holiday season gift guide for that special someone with cystic fibrosis in your life… or maybe someone without CF (if you somehow find this blog), these gifts will work just fine for anyone else too....
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15 Reasons Why I Never Hide My CF

Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk to people with CF only to find out that they aren’t very open about their disease. Now, I...
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