Living with a chronic illness has value. The responsibility of care for CF is both active and arduous, and the condition’s aggressiveness is often debilitating, until it runs a person’s life into the ground. Despite that, though, the illness has also shaped me, hardened me and forced me to be in a constant state of...
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I came across this tweet yesterday and thought… Wow that’s happened to me! I’m going to write about it… A family member prevented a medical error today by telling her surgical team that the antibiotic they were about to give her was incorrect. They told her it was right. She persisted. They double checked. They...
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It’s been awhile since I’ve listed a few “life hacks” I use to make my daily routine with CF a bit easier. I originally wrote about this a long, long time ago… so we’re in need of an update! The solo cup Plastic cups are how I stay organized while I’m doing treatments. I use...
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