The story of cystic fibrosis is quickly becoming one of the greatest success stories in medical history. That is a hell of a statement given not so long ago, a lot of what we have today would have only been a mere pipedream. We still have a long way to go, but if the recent...
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Living with a chronic illness has value. The responsibility of care for CF is both active and arduous, and the condition’s aggressiveness is often debilitating, until it runs a person’s life into the ground. Despite that, though, the illness has also shaped me, hardened me and forced me to be in a constant state of...
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I came across this tweet yesterday and thought… Wow that’s happened to me! I’m going to write about it… A family member prevented a medical error today by telling her surgical team that the antibiotic they were about to give her was incorrect. They told her it was right. She persisted. They double checked. They...
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It’s been awhile since I’ve listed a few “life hacks” I use to make my daily routine with CF a bit easier. I originally wrote about this a long, long time ago… so we’re in need of an update! The solo cup Plastic cups are how I stay organized while I’m doing treatments. I use...
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The ongoing JP Morgan Healtcare Conference is sure to yield a lot of drug development news this week, but I want to take a look at some of the recent CF news. Aside from JPM2019, the start of the New Year is when the pharma and biotech industry likes to make some juicy announcements as...
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Darcy takes over the annual gift guide this year! Make sure you select the BOOMER ESIASON FOUNDATION if you’re using Amazon Smile. Amazon will donate a portion of their revenue from each Amazon Smile sale to BEF! Do you have a loved one on your holiday shopping list who has a chronic illness? This gift...
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Life with chronic illness can seem like a series of calculated risks. Some choices can have a huge impact on my health (positive or negative), and I’ve been through enough in my 27 years to know that it sometimes pays dividends to make conservative choices. Other times, though, I need a kick in the ass...
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