Darcy takes over the annual gift guide this year! Make sure you select the BOOMER ESIASON FOUNDATION if you’re using Amazon Smile. Amazon will donate a portion of their revenue from each Amazon Smile sale to BEF! Do you have a loved one on your holiday shopping list who has a chronic illness? This gift...
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Life with chronic illness can seem like a series of calculated risks. Some choices can have a huge impact on my health (positive or negative), and I’ve been through enough in my 27 years to know that it sometimes pays dividends to make conservative choices. Other times, though, I need a kick in the ass...
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Mental Health is sort of the hot button topic in the CF world these days. Finally… I might add. It seems like just within the last few years someone, somewhere was like, “you know what… all these families might be dealing with some issues from the stresses and anxieties that go along with rigorous daily...
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Welp… now that the Cystic Fibrosis March Madness Bracket is over we can talk about some of the glaring issues that people have when living with CF. That’s right! We’re living in the age of data and information collection, and your stuff has just been collected! Just kidding… but I think we should look at...
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On a recent Breathe In podcast episode, Lea and I discussed some of our experiences with clinical drug studies. I’ve done a few throughout the years, some achieving their goals and others ending in failure. Since the episode aired I’ve gotten a few questions about the up’s and down’s of enrolling in clinical studies. For...
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If you’re living with cystic fibrosis, your life, to an extent, revolves around treatments. For 2+ hours a day, everyday, we’re doing treatments. Some of us can breeze through our treatments if our CF hasn’t progressed, while the rest of us feel like we’re getting a good workout in with each session from all the...
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It’s December so that means Christmastime is here! This year I’ve recruited some help for my gift list. The very lovely Salty Cysters themselves, Tiffany and Lea, have certified this year’s list suitable for people living with cystic fibrosis! 1. Salty Cysters Sweatshirt Lea: This sweatshirt is so cute & comfy. Who doesn’t love cozy sweatshirts...
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