Common Sense: Chronic Illness Version

As I’ve gotten older (and seemingly wiser), I’ve come to realize that certain things are common sense as they relate to living with a chronic illness. It has gotten to the point where I take them for granted – I know this because from time to time I’ll drop in on cystic fibrosis Facebook communities,...
Continue reading...

My Wish List for the New Year

I’m not naïve enough to think that I’m going to wake up tomorrow and find that my life is moving forward with cystic fibrosis in the rearview mirror. We’re still a little bit away from that moment, but that doesn’t mean I don’t have high expectations for treatment development. In many ways, my life with...
Continue reading...

My 2016 Holiday Gift Guide

Christmas is just around the corner, so it is time to start working on those lists to send to Santa! Here’s my holiday season gift guide for that special someone with cystic fibrosis in your life… or maybe someone without CF (if you somehow find this blog), these gifts will work just fine for anyone else too....
Continue reading...