Yesterday was my first time INSIDE a CF clinic since February. The experience felt a bit surreal. At no point in my life did I ever think I would go without a visit to a CF clinic for more than half a year – especially considering the rate of my visits in my early twenties....
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So much of how we evaluate success of various medications is based on objective efficacy. Has the patient’s FEV1 improved? What about BMI or sweat chloride? It goes without saying that efficacy is critical when looking at treatment routines and options, but I think one of the major things that’s often lost in evaluating different...
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Living with a chronic illness has value. The responsibility of care for CF is both active and arduous, and the condition’s aggressiveness is often debilitating, until it runs a person’s life into the ground. Despite that, though, the illness has also shaped me, hardened me and forced me to be in a constant state of...
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I came across this tweet yesterday and thought… Wow that’s happened to me! I’m going to write about it… A family member prevented a medical error today by telling her surgical team that the antibiotic they were about to give her was incorrect. They told her it was right. She persisted. They double checked. They...
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It’s been awhile since I’ve listed a few “life hacks” I use to make my daily routine with CF a bit easier. I originally wrote about this a long, long time ago… so we’re in need of an update! The solo cup Plastic cups are how I stay organized while I’m doing treatments. I use...
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