As I’ve gotten older (and seemingly wiser), I’ve come to realize that certain things are common sense as they relate to living with a chronic illness. It has gotten to the point where I take them for granted – I know this because from time to time I’ll drop in on cystic fibrosis Facebook communities,...
Continue reading...
Well, May is here so that means it is the start of Cystic Fibrosis Awareness Month, or in other words, a chance for us to jam as much CF content down your throat as possible so that you hopefully come away with some inclination of what it is like to live with CF and why...
Continue reading...
I’m not naïve enough to think that I’m going to wake up tomorrow and find that my life is moving forward with cystic fibrosis in the rearview mirror. We’re still a little bit away from that moment, but that doesn’t mean I don’t have high expectations for treatment development. In many ways, my life with...
Continue reading...
Christmas is just around the corner, so it is time to start working on those lists to send to Santa! Here’s my holiday season gift guide for that special someone with cystic fibrosis in your life… or maybe someone without CF (if you somehow find this blog), these gifts will work just fine for anyone else too....
Continue reading...
Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk to people with CF only to find out that they aren’t very open about their disease. Now, I...
Continue reading...
It’s tune-up time again!! A “tune-up,” for those of you who aren’t in the know, is when the IV antibiotics have to come around to kick some ass. Sadly, bacteria can be stubborn. On the flip side of things, stubborn bacteria are probably why we still have life after the dinosaurs went extinct. Science. I...
Continue reading...
So, the other day I coughed up some blood. It’s pretty awesome when that happens. It’s also a pretty great party trick. “Hey, want to see what I can do?” If you’ve never had the pleasure of trying it out, let me take you through the experience. First, there’s the gurgle – it sort of...
Continue reading...
