We Have Responsibilities That Extend Beyond Our Health

We’re human beings, we have responsibilities – they extend beyond our health. We work, we have families, friends, hobbies, and obligations. We have lives outside of cystic fibrosis. My newest responsibility is my puppy, Blink. Blink is a Jack Russell Terrier (or so we think), and she’s absolutely taken over the house. We have another...
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Don’t Devalue Your Chronic Illness

I came across an opinion piece on STAT where Adam Hayden, a brain cancer patient, argues that drug companies and medical schools should be compensating patients for their “expertise” in whatever condition we are living with. I’ve never read an article that I have more wholesomely agreed with. Hayden talks about understanding the intricacies of...
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I Read “Alex: The Life of a Child”

Alex: The Life of a Child is THE book about life with cystic fibrosis. In the world of cystic fibrosis, many read it upon learning about the diagnosis of their child. Some parents hide it from their children, hoping they never find it… others read it with their kids. It will forever remain THE book...
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My Running Journey 11 – 4 Workouts Left!!!!

I am quickly approaching the finish line. Well… I guess “quickly” isn’t the correct word, since I’m not moving anywhere quickly. My conditioning is definitely improving – my legs feel pretty good when I am getting through my runs. I am beyond walking at this point. If I were to constructively criticize the app, I’d...
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My Running Journey 10 – Catching Up

I missed my running blog post last week. It was kind of a crazy week, I just started my high school hockey season, so I haven’t had as much time to write as I normally do. For those of you who are on the edge of your seats waiting for my weekly running post, I’m...
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My Running Journey #9 – Progress

Progress…. I guess it’s sort of ironic that I’m talking about progress in my 9th blog post when this was supposed to be an 8-blog series, but alas such is life with cystic fibrosis. I know I’m a couple days late with this post, but I’ve had some other stuff going on. The blog life...
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It Takes Real Courage To Go Through a Medical Procedure

I noticed the hashtag #ItTakesRealCourageTo trending on Twitter this morning. The hashtag follows quite a few heartwarming tweets. People were talking about overcoming cancer, addiction, or any number of physical or emotional issues. Aside from the classic Internet trolls or people who love to force politics into everything, it was a really inspiring Twitter thread...
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