Lea Faraone Was an Amazing Person

Lea slid into my DMs about two and a half years ago asking if I’d be willing to help her with a video she was making for Tiffany Rich’s transplant recovery. Lea’s best friend was in a dire situation and all she wanted to do was help. Little did I know that would be the...
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We Have Responsibilities That Extend Beyond Our Health

We’re human beings, we have responsibilities – they extend beyond our health. We work, we have families, friends, hobbies, and obligations. We have lives outside of cystic fibrosis. My newest responsibility is my puppy, Blink. Blink is a Jack Russell Terrier (or so we think), and she’s absolutely taken over the house. We have another...
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Don’t Devalue Your Chronic Illness

I came across an opinion piece on STAT where Adam Hayden, a brain cancer patient, argues that drug companies and medical schools should be compensating patients for their “expertise” in whatever condition we are living with. I’ve never read an article that I have more wholesomely agreed with. Hayden talks about understanding the intricacies of...
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