Standby for a poop blog! Yesterday I was at clinic for a routine visit, and part of that visit included a sonogram. Actually… believe it or not, October is Medical Ultrasound Awareness Month. Did you know that? I didn’t. Anywhoooo…I decided to make light of that part of my trip and play a little game....
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I had a great tip to Knoxville and Eastern Tennessee Children’s Hospital over the weekend. I love learning from CF families all over the country. G-Tube Stigma One thing I learned from the CF Family Day at ETCH is that the stigma around g-tubes still exists. The g-tube is a visual indication of illness, being...
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I don’t think I need to write too much here… The pictures below sort of speak for themselves. On the left I was 18 years old, about a week or so away from heading off to college, fully grown (about 6’3) and seriously malnourished. The picture on the right was taken a little less than...
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People love when I swap out my feeding tube, so let’s dedicate a blog post to it! The G-tube is hardly a permanent device. At least that’s what the told me to sell me on the idea of getting one. “Don’t worry, Gunnar. It doesn’t last forever!” Little did I know that actually meant I’d...
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This installment is coming at you from sunny (read: rainy) Florida! Sterilizing Nebs on the Go It’s been awhile since I’ve taken a vacation longer than a long weekend, maybe 3 years or so? With any extended vacation comes the question of how many neb cups am I going to take and how am I...
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Where are my feeding tube people at?! I was recently introduced to the Bolee bFed feeding tube system from U Deliver Medical, and this thing is pretty cool. This is changing the way I ‘m doing bolus feeds, and YOU need to jump on board. If you’re an experienced tubie like myself, then you know...
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This has kind of been weighing on me for a while. I fall into cycles where I feel like I haven’t had a good night of sleep in who knows how long. Sure, I fall asleep each night, but when I wake, I do so without feeling rested. My health has be ehhhhhh lately. I’m...
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