via GIPHY In the wee hours of last night, my feeding tube bag ripped. In my 9 years of using a feeding tube, I have never had a bag rip, but last night I did. Quite frankly, I didn’t even know the bag could rip. I guess you can call me naïve. The rip resulted...
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Gunnar asked me to write a blog for #feedingtubeawarenessweek, and since I mostly write about CF as it relates to dating/relationships, I thought it would make sense for me to write about how feeding tube stigma might impact dating and relationships. The thing is, I can’t, because I love his feeding tube!! Allow me to...
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Happy #FeedingTubeAwarenessWeek to all my tubies out there! Whenever I write about my feeding tube, I generally talk about how amazing it has been for me. My g-tube has helped me accomplish so much, and for that reason it’s always easy to write about. I want to kick off Feeding Tube Awareness Week with something...
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Day four with my cold and I can see the faintest light at the end of the tunnel. I pull out all the tricks when I’m sick, but none more important than hammering away with my feeding tube. I’m the kind of person who hates eating when I get sick. I just have absolutely no...
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Standby for a poop blog! Yesterday I was at clinic for a routine visit, and part of that visit included a sonogram. Actually… believe it or not, October is Medical Ultrasound Awareness Month. Did you know that? I didn’t. Anywhoooo…I decided to make light of that part of my trip and play a little game....
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I had a great tip to Knoxville and Eastern Tennessee Children’s Hospital over the weekend. I love learning from CF families all over the country. G-Tube Stigma One thing I learned from the CF Family Day at ETCH is that the stigma around g-tubes still exists. The g-tube is a visual indication of illness, being...
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I don’t think I need to write too much here… The pictures below sort of speak for themselves. On the left I was 18 years old, about a week or so away from heading off to college, fully grown (about 6’3) and seriously malnourished. The picture on the right was taken a little less than...
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