I often get asked why I find it so easy to tell someone new about my cystic fibrosis. The first thing I say in response is that it actually really isn’t the easiest thing in the whole world, it is just easier tell someone about it up front rather than keeping a giant secret. When...
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I spent the past couple days in Northern Kentucky and Ohio, more specifically, the Cincinnati area, where I was born and lived for the first few years of my life. I hardly have the right to call myself a Kentuckian since I’ve called Long Island home for so long, but I did live there in...
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It is hard to put into words what my parents have done for not only me, but also the cystic fibrosis community as a whole. As the story goes, my dad wanted to get involved in CF fundraising well before I was even born. He and my mom were at an awards dinner and Frank...
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My mom is really the unsung hero when it comes to the invaluable support I have gotten from my family throughout my fight with cystic fibrosis. Whereas my dad gets a ton of the credit (rightfully so) in the public eye for bringing a ton of awareness to the disease, my mom has been, and...
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So, before we get going, this is really my first attempt at a blog… here we go. It’s no secret that I have cystic fibrosis, it shouldn’t be. It is apart of me, but it doesn’t define who I am. I never let my disease dictate my life. I have so much more to live...
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