With the calendar turning to October this week (thank God 2020 is coming to an end), we will be celebrating one year of Trikafta’s availability in the United States. It goes without saying that a lot has happened since then – the most significant thing to celebrate is the CF community’s seemingly overnight transformation. Not...
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Yesterday was my first time INSIDE a CF clinic since February. The experience felt a bit surreal. At no point in my life did I ever think I would go without a visit to a CF clinic for more than half a year – especially considering the rate of my visits in my early twenties....
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My love/hate relationship with social media took a turn for the best this past weekend. My Instagram account reminded me of a picture from two years ago: I was on a Long Island beach (best in the world, by the way) on a cool September evening. It was right after Darcy and I took some...
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Talking candidly about cystic fibrosis during the first few days of my freshman year at college was one of the most liberating experiences of my life. It went something like this: My roommate, David, and I lived in a room that was assigned to us via my appeal under the Americans with Disabilities Act. My...
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The truth is I cannot. Competing interests and priorities reign supreme, and that undermines the integrity of any bubble that any place of education is trying to uphold. I empathize with the hesitation to go back to in person learning in the Fall. Although I fully intend to try to engage in the hybrid learning...
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It’s true, in a world filled with chaos, nice things still happen. Yesterday that nice thing was meeting my niece, Winnie. Darcy and I had to wait the full two-week cycle from when Sydney returned home from the hospital before we could see the baby. The wait was borne out of an abundance of caution...
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The list of victims at the hands of the coronavirus pandemic is long, far too long. It may even be an unquantifiable number. There are, of course, the sick, dead, and dying. There are people who will miss out on the opportunity for routine screeners – like colonoscopies and mammograms – and undoubtedly pay the...
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