With each day that goes by, it feels like we are heading straight towards the next chapter of our lives together. Darcy and I have officially started transforming one of the rooms in our home into a nursey (catch my DIY projects on Instagram). My clothes are getting moved out of the closet this week,...
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Venture Philanthropy in biotechnology is as close to a patient-centered investment thesis as there could be. It allows investors and non-profit disease associations working on behalf of patient populations to consider risk, outcome, exit, time horizon, deal sourcing, and non-financial intangibles differently than a traditional venture capitalist. When a non-profit organization engages in venture philanthropy...
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Let’s take a look at my browsing history (No, I don’t subscribe to print newspapers…)! Former New York Giants head coach (and former BC Eagles head football coach), Tom Coughlin, took to the New York Times Opinion column to pen a thoughtful piece about his wife’s recently diagnosed brain disorder, progressive supranuclear palsy. The condition...
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Anytime I hear (or see) someone talking about the Pfizer or Moderna vaccines as if they are experimental, I cringe on the inside. I’d go as far as saying it feels like a slap in the face for anyone who has ever enrolled in a clinical trial. I am one of those people. From 2013...
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Alright, team! I am going to try something new on the blog. One of the most fundamental parts of the patient advocate life is to stay up to date with current events, news and medical literature in cystic fibrosis, the world of rare disease and health policy. I spend a lot of time reading articles...
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In 2019, the New York Times published an article about how the pineapple is the unofficial symbol of infertility and IVF. Apparently, this is because the pineapple symbolizes IVF families as tough on the outside but sweet on the inside, and it encourages women to stand tall and wear a crown, but it also has...
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Fertility is often cited as a reason for COVID-19 vaccine hesitancy. Misinformation is permeating into our lives through the media we consume daily. Surely, you’ve heard it by now, “we need to combat vaccine misinformation!” It’s also likely you know someone who deeply believes something that you likely understand to be completely nuts. Let my...
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