I will be the first to admit that I have pandemic fatigue. I miss having a beer after hockey with my teammates, I miss going to class, and I miss freely going to the grocery store without having to orchestrate some massive plan. I also miss the days when working hours wouldn’t blend into time...
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This written interview was completed by Catya Kurban, a young woman living with cystic fibrosis who recently completed her masters in science (Child Life and Family Centered Care). She is a patient-facing healthcare worker. 1) why did you get the vaccine? I recently graduated with my masters in science studying Child Life and Family Centered...
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This post was written by Megan DiBenedetto. She is 28 with cystic fibrosis from the New York City area and is a practicing nurse at NYU Langone Health. I’m 28 years old with cystic fibrosis and I’m a bone marrow transplant nurse for NYU Langone Health, a New York City area hospital system. I received...
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Since the beginning of the COVID-19 vaccine development process, Moderna has sought to be incredibly transparent with the trial population – from age groupings, to racial identifiers and risk groups. Today’s release of data about their vaccine candidate has not been any different. Embedded in the FDA’s briefing document on the Moderna COVID-19 Vaccine, the...
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The FDA’s vaccine advisory meeting is today where it’s probably all but certain that the committee will vote to move Pfizer/BioNTech’s vaccine across the Emergency Use Authorization finish line to begin the largest mass vaccination campaign since polio vaccinations began in the mid 20th century. If you’re following me on Twitter, you know I have...
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It is just going to look different. Like so many, Darcy and I are avoiding travel for Thanksgiving. We are staying inside New England’s sphere of regional quarantine rules for Thanksgiving. It’ll be my first Thanksgiving without my family. It is disappointing. It is disappointing because of the role Thanksgiving plays in our family. It...
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Last week I celebrated one year free of IV antibiotics. Darcy and I took a stroll down main street in Woodstock, Vermont and grabbed coffee at one of our favorite cafés in the area. It’s a milestone that we always love to celebrate because memories of just the opposite still plague our thoughts. In the...
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