Salt in My Soul, the documentary version, is something special. If you’ve followed the blog for a long time, you know I loved the book. In fact, Darcy and I had a passage from Salt in My Soul read aloud at our wedding: My life is a miracle. Life in general is a miracle. Our...
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Let’s talk about out-of-pocket costs, or OOP’s. We all confront them when we receive healthcare, and when we do, they distort our perceptions about the true cost of care. They come in the form of copays, coinsurance, and deductibles. Importantly, they come on top of the premiums way pay to buy health insurance. Just reading...
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The Cystic Fibrosis Foundation has started off the new year with a handful of new investments that suggest the cystic fibrosis market is accelerated, and not decelerating as some had feared. Not long after Trikafta was approved by the FDA, the world rightly celebrated such an important milestone in the history of biomedical innovation. Cystic...
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What a surreal couple of days! Darcy safely delivered our baby boy, Kaspar Fitzwilliam Esiason, into the world, and when it happened, we both couldn’t stop crying. The rush of emotion was like nothing I have ever felt, and I’m not sure I even have an adequate vocabulary to describe it all. Both Darcy and...
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I am about the same age today as when my parents welcomed me into the world. Though, as I am told, my first few years weren’t all sunshine and rainbows. I suffered from different ailments throughout my early infant years. The most common issue was an incessant ear infection, or so everyone thought. Often my...
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Last week we celebrated news out of the North American Cystic Fibrosis Conference that median age of survival (remember, the age beyond which we expect 50% of people with CF born today to live, under the assumption that recent age-specific mortality rates will hold for the rest of their lives) climbed to 50 years old,...
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Drug pricing reform is charging through congress, and like anything else in Washington, our lawmakers try to jam as many (or not enough depending on whom you ask…) nuances into individual bills. A lot of different dynamics come into play from out-of-pocket costs to insurance benefits and, of course, plain old drug pricing. Today, let’s...
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