Right to Try to be Signed Into Federal Law

As I said earlier this week, we’d be getting a Right-to-Try vote in the House, and well, we got that vote. Last night the House voted to approve the bill and will now send it to President Trump’s desk for his signature (it’s pretty much guaranteed conclusion that he will sign it). As reported by...
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How Do We Improve the Patient Experience?

Illness is almost routine in CF. The cough starts, then the fever, then the mucus production, then the change in the consistency of the mucus, then the call to the doctor. What follows that call is really one of a few possibilities. “Come in, let’s get it checked out.” “Start Cipro, stay in touch with...
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