If you were up bright and early this morning, you saw Vertex released limited results from their VX-445 clinical study stating the trial achieved it’s primary endpoint, and showing significant improvement in FEV1 at the 4 week mark in people with one copy of F508del and people who are homozygous F508del. If you recall, Vertex has TWO...
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Alright, folks, here we are again… talking about respirators. Think of this as a gentle reminder…. Reusable respirators are NOT suitable for people living with cystic fibrosis. I’d like to think we’re beyond this, but the question does come up quite frequently. Unfortunately, I don’t think our care providers do a great job of explaining...
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What a time to be alive! Extinct illnesses are BACK. What a time to be alive, indeed. In fact, it’s quite depressing that here we are, discussing the selfishness of people who refuse to vaccinate their kids in response to a mythical fear. It’s equally depressing for all of us to feel the need to...
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The ongoing JP Morgan Healtcare Conference is sure to yield a lot of drug development news this week, but I want to take a look at some of the recent CF news. Aside from JPM2019, the start of the New Year is when the pharma and biotech industry likes to make some juicy announcements as...
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Our friend Amy, from Drug Development Wednesday, is back talking about CFRD. This article was originally published in CF Roundtable®, Summer 2018 newsletter. Cystic Fibrosis Related Diabetes (CFRD) is the CF complication that I feared my whole life. I love sugary foods and I hate needles, so CFRD was definitely something I always wanted to avoid no...
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Happy Monday, folks! It’s been a hot minute since we’ve had a Monday Morning Thoughts blog post, but it happens. What can I say? Chronic infection is a killer in cystic fibrosis. It’s widely accepted that although infection rates are slowly decreasing across the community (maybe thanks to kids getting on CFTR modulators before their...
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Believe it or not, drug manufacturers want us to use their medications. It’s how we get healthy, and it’s how they make money, which keeps them in the business of making medications for us. If that’s not a circular symbiotic relationship, then I don’t know what is. Of course, we don’t actually pay the drug...
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