New Triple Combo Data Released! What We Know?

If you were up bright and early this morning, you saw Vertex released limited results from their VX-445 clinical study stating the trial achieved it’s primary endpoint, and showing significant improvement in FEV1 at the 4 week mark in people with one copy of F508del and people who are homozygous F508del. If you recall, Vertex has TWO...
Continue reading...

Don’t Fall Victim To Aggressive Marketing Campaigns, Reusable Masks Are NOT Appropriate for Cystic Fibrosis Patients

Alright, folks, here we are again… talking about respirators. Think of this as a gentle reminder…. Reusable respirators are NOT suitable for people living with cystic fibrosis. I’d like to think we’re beyond this, but the question does come up quite frequently. Unfortunately, I don’t think our care providers do a great job of explaining...
Continue reading...

Disaster Ahead: Cystic Fibrosis Related Diabetes (CFRD) – The complication that’s impacting your lungs more than you realize

Our friend Amy, from Drug Development Wednesday, is back talking about CFRD. This article was originally published in CF Roundtable®, Summer 2018 newsletter. Cystic Fibrosis Related Diabetes (CFRD) is the CF complication that I feared my whole life. I love sugary foods and I hate needles, so CFRD was definitely something I always wanted to avoid no...
Continue reading...