My friends over at CF Yogi wanted to talk a little bit about what they’re doing to get the CF community up and moving! I’ll let Myra take it away… My name is Myra Giaffoglione, and I’m a parent of two young children with cystic fibrosis. My journey as a CF caregiver has developed right...
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To my sweet Lea Marie, It’s been almost a month and a half since you gained your wings, but that also means you have been pain-free and breathing easy for a month and a half too. I went to see a CF psychologist a couple weeks ago to talk through some of my anxiety and...
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My wife, Megan, and I always knew we wanted kids. We also knew it wasn’t going to be easy. We knew there was going to have to be medical intervention—and we were OK with that. We’d known for quite some time that IVF was going to be our route. That’s the beauty of science. It...
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We are the Oneto Family: Ben, Beth and Tyler. Since before we got married, we always knew we wanted to be parents, but when CF is a part of your life, tough questions have to be asked and difficult conversations need to be had. Being that Ben is the one who has CF in our...
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I am thrilled to be introducing a new series on Gunnar’s blog, called Family Building Fridays. Family Building Fridays will be a series of blog posts, each authored by a different family impacted by CF, that will address a lot of meaningful topics within the CF community. We’re going to be highlighting families built through...
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Tiffany Rich writes a letter to her best friend and soul cyster, Lea Faraone. To My Best Friend and Salty Cyster, I miss and love you. Since the beginning of December when you weren’t feeling well, I never thought that this would be the end. My heart hurts and I have no words that can...
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Our friend Amy, from Drug Development Wednesday, is back talking about CFRD. This article was originally published in CF Roundtable®, Summer 2018 newsletter. Cystic Fibrosis Related Diabetes (CFRD) is the CF complication that I feared my whole life. I love sugary foods and I hate needles, so CFRD was definitely something I always wanted to avoid no...
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