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Family Building Friday: The Woodruff Family, Surrogacy

  • 08. Mar. 2019
  • /
  • Family Building Fridays, Guest Column

John and I met in 1990. Yes, 1990, in Ms. Hairston’s kindergarten class. After one year of school together, I switched schools and we wound up in different grades. I remember seeing John around town, but we never spoke again until after college in a NYC bar where he came over to talk to me....
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Family Building Friday: The Albright Family, Adoption

  • 01. Mar. 2019
  • /
  • Family Building Fridays, Guest Column

It was very clear to me early on that I wanted to be a father. The imprint was so strong that when I was diagnosed with CF at 15 my most salient concern was not that I had just found out that I had a shorter life span, but that I couldn’t have children. When...
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Family Building Friday: The Carfora Family, Surrogacy, IVF/PGD

  • 22. Feb. 2019
  • /
  • Family Building Fridays, Guest Column

My husband, Jimmy, and I knew that we wanted to have children very early into our relationship and discussed how our family would come to existence at length. I have cystic fibrosis and I was four years post bilateral lung transplant when Jimmy and I started dating. Quickly into our relationship, I experienced some serious...
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Family Building Friday: The Walker Family, Pregnancy and CF

  • 15. Feb. 2019
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  • Family Building Fridays, Guest Column

Adam and I met the summer before my freshman year in high school and briefly dated for a few months that fall. We ended up breaking up but remained friends throughout the years. When I graduated from high school we crossed paths and started to date again and 6 years later Adam proposed and we...
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Family Building Friday: The Neville Family, IVF/PGD

  • 08. Feb. 2019
  • /
  • Family Building Fridays, Guest Column

Megan Neville takes us through the IVF/PGD process. Our firstborn son Aidan was diagnosed with CF through newborn screening at 8 days old. The initial shock and devastation was overwhelming. I could not believe that this perfect looking baby we created out of love was facing this awful disease. As we learned the realities of...
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Darcy’s Blog: I Love Gunnar’s Feeding Tube

  • 06. Feb. 2019
  • /
  • Feeding Tube, Guest Column

Gunnar asked me to write a blog for #feedingtubeawarenessweek, and since I mostly write about CF as it relates to dating/relationships, I thought it would make sense for me to write about how feeding tube stigma might impact dating and relationships. The thing is, I can’t, because I love his feeding tube!! Allow me to...
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Myra Giaffoglione: How Yoga Can Help our CF Families

  • 06. Feb. 2019
  • /
  • Guest Column

My friends over at CF Yogi wanted to talk a little bit about what they’re doing to get the CF community up and moving! I’ll let Myra take it away… My name is Myra Giaffoglione, and I’m a parent of two young children with cystic fibrosis. My journey as a CF caregiver has developed right...
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G17Esiason

Saved by science 🧬 Patient advocate 🫁 Dog dad 🐶 MBA‘21 @TuckSchool, MPH‘22 @Dartmouth 🌲 Past: High school hockey coach 🏒 & BC '13 🦅 #cysticfibrosis

Hanover, NH

Jan 31 12:00

RT @thenewsoncnbc: Emory’s @CarlosdelRio7 says he’s worried that we’re transitioning from a vaccine supply issue to a vaccine demand issue.…

Reply
Jan 31 12:00

Tbh my one regret with my Covid vaccines is that I didn’t get them at a cool location for the sake of a memory. I d… https://t.co/kifToj8Vau

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Jan 31 12:00

RT @DrugChannels: New @Altarum analysis: Prices at #hospitals & #physicians outpace prescription #drugs again https://t.co/QHle9MKIEd Hos…

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Jan 31 12:00

Tbh the key to overcoming hesitancy is as simple as following a play book in one off cases... at least it’s what I… https://t.co/0uzWUbKEGT

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2021 Reading List

Being Mortal - Dr. Atul Gawande
Fearless - Eric Blehm
Soaring to Glory - Philip Handleman & Harry Stewart Jr.
The Spy and the Traitor - Ben Macintyre
Vivid Vision - Cameron Herold
Washington's Immortals - Patrick K. O'Donnell
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Latest Podcasts

  • Posts
  • Breathe In Ep. #98 – The Legal Marriage Question December 9, 2019
  • Breathe In Ep. #97 – Misdiagnosed November 22, 2019

Latest CF Around the World Blogs

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  • Cystic Fibrosis Around the World: Morocco January 6, 2021
  • Cystic Fibrosis Around the World: Turkey September 30, 2020

Monthly Archives

Posts by Category

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MEDICAL DISCLAIMER

*Nothing on these CF blog posts and podcasts should be considered medical advice. Such advice can only be given by a physician who is experienced with cystic fibrosis. The contributors on this blog/podcast cannot be held responsible for any damage which may result from using the information on this blog/podcast without permission of their medical doctor.

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By submitting this form, you are granting: Boomer Esiason Foundation, 483 10th Avenue, New York, New York, 10018, United States, http://www.esiason.org permission to email you. You may unsubscribe via the link found at the bottom of every email. (See our Email Privacy Policy for details.) Emails are serviced by Constant Contact.

MEDICAL DISCLAIMER
*Nothing on these CF blog posts and podcasts should be considered medical advice. Such advice can only be given by a physician who is experienced with cystic fibrosis. The contributors on this blog/podcast cannot be held responsible for any damage which may result from using the information on this blog/podcast without permission of their medical doctor.

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