Today we have a very special guest post from Paul Widmeyer, boyfriend of the late Lea Faraone. On December 13, 2018, I lost my soulmate, best friend, and hero – Lea Faraone. In the months gone by, the question I sense her wanting me to answer is, was it all worth it? Knowing she had...
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Tiffany Rich writes a response to my blog post that appeared on the site last week! Last week Gunnar wrote a blog post following our Buy or Sell podcast! We had the topic of labels; CFer, cyster, and fibro vs person with CF, and, of course, Gunnar and I find ourselves on opposite sides of...
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You might have heard of my late girlfriend, Mallory Smith. A frequent contributor to the CF community, Mallory was a blogger, podcaster, radio producer and more recently author of Salt in my Soul: An Unfinished Life, by Mallory Smith, published posthumously by Penguin Random House on March 12th. She passed away in November of 2017...
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I always hoped I would become a mother one day but never allowed myself to get my hopes up in fear of it not happening. When I was six years old my parents received the diagnosis that both of my younger brothers and I had cystic fibrosis. Our lives changed forever as we entered the...
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John and I met in 1990. Yes, 1990, in Ms. Hairston’s kindergarten class. After one year of school together, I switched schools and we wound up in different grades. I remember seeing John around town, but we never spoke again until after college in a NYC bar where he came over to talk to me....
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It was very clear to me early on that I wanted to be a father. The imprint was so strong that when I was diagnosed with CF at 15 my most salient concern was not that I had just found out that I had a shorter life span, but that I couldn’t have children. When...
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My husband, Jimmy, and I knew that we wanted to have children very early into our relationship and discussed how our family would come to existence at length. I have cystic fibrosis and I was four years post bilateral lung transplant when Jimmy and I started dating. Quickly into our relationship, I experienced some serious...
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