Adam and I met the summer before my freshman year in high school and briefly dated for a few months that fall. We ended up breaking up but remained friends throughout the years. When I graduated from high school we crossed paths and started to date again and 6 years later Adam proposed and we...
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Megan Neville takes us through the IVF/PGD process. Our firstborn son Aidan was diagnosed with CF through newborn screening at 8 days old. The initial shock and devastation was overwhelming. I could not believe that this perfect looking baby we created out of love was facing this awful disease. As we learned the realities of...
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Gunnar asked me to write a blog for #feedingtubeawarenessweek, and since I mostly write about CF as it relates to dating/relationships, I thought it would make sense for me to write about how feeding tube stigma might impact dating and relationships. The thing is, I can’t, because I love his feeding tube!! Allow me to...
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My friends over at CF Yogi wanted to talk a little bit about what they’re doing to get the CF community up and moving! I’ll let Myra take it away… My name is Myra Giaffoglione, and I’m a parent of two young children with cystic fibrosis. My journey as a CF caregiver has developed right...
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To my sweet Lea Marie, It’s been almost a month and a half since you gained your wings, but that also means you have been pain-free and breathing easy for a month and a half too. I went to see a CF psychologist a couple weeks ago to talk through some of my anxiety and...
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My wife, Megan, and I always knew we wanted kids. We also knew it wasn’t going to be easy. We knew there was going to have to be medical intervention—and we were OK with that. We’d known for quite some time that IVF was going to be our route. That’s the beauty of science. It...
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We are the Oneto Family: Ben, Beth and Tyler. Since before we got married, we always knew we wanted to be parents, but when CF is a part of your life, tough questions have to be asked and difficult conversations need to be had. Being that Ben is the one who has CF in our...
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