Getting Comfortable with a New CF Clinic

All throughout my life, I have sought CF care from a number of clinics simply because I have lived in a bunch of different places. Experience tells me that transitioning from clinic to clinic is equal parts awkward, uneasy, exciting, refreshing and hopeful. When I was little, I started my CF journey at Cincinnati Children’s...
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Tiffany Rich: Hey Cyster!

Tiffany Rich writes a response to my blog post that appeared on the site last week! Last week Gunnar wrote a blog post following our Buy or Sell podcast! We had the topic of labels; CFer, cyster, and fibro vs person with CF, and, of course, Gunnar and I find ourselves on opposite sides of...
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Stop Calling Me a “Fibro”

Today, folks, we’re going to talk about labels and why they’re bad.  The terms “fibro” “cyster” and “CFer” are all labels that get tossed around the CF community. I don’t like them. In fact, I feel second hand embarrassment when someone uses any of the above to describe other people with CF. In a world...
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