We are the Oneto Family: Ben, Beth and Tyler. Since before we got married, we always knew we wanted to be parents, but when CF is a part of your life, tough questions have to be asked and difficult conversations need to be had. Being that Ben is the one who has CF in our...
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I am thrilled to be introducing a new series on Gunnar’s blog, called Family Building Fridays. Family Building Fridays will be a series of blog posts, each authored by a different family impacted by CF, that will address a lot of meaningful topics within the CF community. We’re going to be highlighting families built through...
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Day four with my cold and I can see the faintest light at the end of the tunnel. I pull out all the tricks when I’m sick, but none more important than hammering away with my feeding tube. I’m the kind of person who hates eating when I get sick. I just have absolutely no...
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Tiffany Rich writes a letter to her best friend and soul cyster, Lea Faraone. To My Best Friend and Salty Cyster, I miss and love you. Since the beginning of December when you weren’t feeling well, I never thought that this would be the end. My heart hurts and I have no words that can...
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It’s that time of year, I guess, and I have a cold. A little while ago, Darcy also had her turn with a cold (for those of you keeping score at home, we avoided seeing each other to prevent transmission, but alas, this is what I get for working with high school kids), and she...
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Back in December, Darcy, in a blog post, asked the question, “Is it more important to be vulnerable or to be strong?” When confronted with the ultimate challenge of illness and difficult situations, what’s the appropriate way to attack them? For people in our support systems (like Darcy’s role in mine), is it better to...
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I came across this tweet yesterday and thought… Wow that’s happened to me! I’m going to write about it… A family member prevented a medical error today by telling her surgical team that the antibiotic they were about to give her was incorrect. They told her it was right. She persisted. They double checked. They...
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