The story of cystic fibrosis is quickly becoming one of the greatest success stories in medical history. That is a hell of a statement given not so long ago, a lot of what we have today would have only been a mere pipedream. We still have a long way to go, but if the recent...
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This past weekend I was honored to deliver the 2019 St. Louis University School of Medicine Pre-Commencement address. My very first pediatric doctor at Cincinnati Children’s Hospital, Robert Wilmott MD, is now the acting dean at the SLU School of Medicine and extended the invite to me not long ago. I so very much appreciate...
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I was one of those children who when asked what they wanted to be when they grew up said a mommy. I wanted three children from pretty much day one. When I had my second baby I couldn’t have been happier. I remember so clearly nearly 25 years ago now walking down the street with...
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Today we have a very special guest post from Paul Widmeyer, boyfriend of the late Lea Faraone. On December 13, 2018, I lost my soulmate, best friend, and hero – Lea Faraone. In the months gone by, the question I sense her wanting me to answer is, was it all worth it? Knowing she had...
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If you remember way back (like a year and a half ago) I did the Couch-to-5k running program to improve my airway clearance. I hated running, but I did it anyway because I wanted to feel better! I wrote about it to keep it me consistent, and because I wanted to invite YOU to join...
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I was a senior in college when I learned that, while incredibly unlikely, the vaccines we received when we were children can wear off. Why did I learn that weird fact, you may ask? Well, because we had a mumps outbreak at Boston College, and one of my friends learned the hard way that she...
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All throughout my life, I have sought CF care from a number of clinics simply because I have lived in a bunch of different places. Experience tells me that transitioning from clinic to clinic is equal parts awkward, uneasy, exciting, refreshing and hopeful. When I was little, I started my CF journey at Cincinnati Children’s...
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