Gunnar asked me to write a blog for #feedingtubeawarenessweek, and since I mostly write about CF as it relates to dating/relationships, I thought it would make sense for me to write about how feeding tube stigma might impact dating and relationships. The thing is, I can’t, because I love his feeding tube!! Allow me to...
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My friends over at CF Yogi wanted to talk a little bit about what they’re doing to get the CF community up and moving! I’ll let Myra take it away… My name is Myra Giaffoglione, and I’m a parent of two young children with cystic fibrosis. My journey as a CF caregiver has developed right...
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To my sweet Lea Marie, It’s been almost a month and a half since you gained your wings, but that also means you have been pain-free and breathing easy for a month and a half too. I went to see a CF psychologist a couple weeks ago to talk through some of my anxiety and...
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Happy #FeedingTubeAwarenessWeek to all my tubies out there! Whenever I write about my feeding tube, I generally talk about how amazing it has been for me. My g-tube has helped me accomplish so much, and for that reason it’s always easy to write about. I want to kick off Feeding Tube Awareness Week with something...
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My wife, Megan, and I always knew we wanted kids. We also knew it wasn’t going to be easy. We knew there was going to have to be medical intervention—and we were OK with that. We’d known for quite some time that IVF was going to be our route. That’s the beauty of science. It...
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This has been a long time coming, folks. For the first time in close to 15 years, really since starting high school, I went a FULL calendar year without a pulmonary exacerbation. For most of my life, I was the kind of person who went on IV’s once a year with the occasional exception. It’s...
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The CF voice… it’s the raspy deep voice that so many of us have thanks to inflamed airways, inflamed vocal chords, medication use and a number of other reasons. In fact, it’s actually something that has been studied. Interestingly enough, it was found to be more “pronounced” (I appreciate the pun from the authors) in...
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