Coverage Tips for Costly Drugs (and other musings on paying for medications with CF) – Part 1, Private Insurance

Amy, who generously penned our Drug Development Wednesday series, is back to discuss coverage options and payment strategies in the United States. This guest column will include three blogs and discuss different ways people may face easy access to medications or challenging and costly hurdles. It’s important to note that what is discussed below may...
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Address the Unseen Scars: Mental Health and Cystic Fibrosis

I am reblogging this article that I wrote for Emily’s Entourage, which originally appeared HERE. What is Emily’s Entourage? “Emily’s Entourage accelerates research and drug development for nonsense mutations of Cystic Fibrosis. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. [Their] goal...
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Parents, It’s Okay to Let Your Kid Grow Up

Shifting age appropriate responsibilities from the parent to the child always seems to be a difficult task for cystic fibrosis families. It’s a slow methodical process that seems to work at a snail’s pace. I think it’s due in large part to the dreaded drop that many young adults are forecasted to face. This week...
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