I was one of those children who when asked what they wanted to be when they grew up said a mommy. I wanted three children from pretty much day one. When I had my second baby I couldn’t have been happier. I remember so clearly nearly 25 years ago now walking down the street with...
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Today we have a very special guest post from Paul Widmeyer, boyfriend of the late Lea Faraone. On December 13, 2018, I lost my soulmate, best friend, and hero – Lea Faraone. In the months gone by, the question I sense her wanting me to answer is, was it all worth it? Knowing she had...
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If you remember way back (like a year and a half ago) I did the Couch-to-5k running program to improve my airway clearance. I hated running, but I did it anyway because I wanted to feel better! I wrote about it to keep it me consistent, and because I wanted to invite YOU to join...
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I was a senior in college when I learned that, while incredibly unlikely, the vaccines we received when we were children can wear off. Why did I learn that weird fact, you may ask? Well, because we had a mumps outbreak at Boston College, and one of my friends learned the hard way that she...
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All throughout my life, I have sought CF care from a number of clinics simply because I have lived in a bunch of different places. Experience tells me that transitioning from clinic to clinic is equal parts awkward, uneasy, exciting, refreshing and hopeful. When I was little, I started my CF journey at Cincinnati Children’s...
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Tiffany Rich writes a response to my blog post that appeared on the site last week! Last week Gunnar wrote a blog post following our Buy or Sell podcast! We had the topic of labels; CFer, cyster, and fibro vs person with CF, and, of course, Gunnar and I find ourselves on opposite sides of...
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In 2018 we awarded over $400,000 total in scholarships to almost 100 students! That mark has been our annual goal for a while, and it will continue to be for years to come. As the cystic fibrosis population ages, though, our scholarship program must adapt! People with CF are truly living longer than ever, and...
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