Today is my one-month anniversary for being in self-isolation. Some days I wake up feeling like that time has flown by. Other days it feels like this past month has been the longest decade of my life. At the heart of the month I have been in isolation is my routine, the daily cystic fibrosis...
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Medical security is one of the most fundamental rights offered to patients and the medical system. Patient privacy is why I often omit or generalize different medical details about my own life within these blogs. I don’t write about PFT scores, test results and things like that. It’s also why I never tried to track...
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When I graduated from college my dad asked me how much time I had missed over my four years at BC. A lot. I have since gone back and looked it over. The amount of time probably came out to several months worth of missed days – not just school, but all the other great...
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Trikafta has given me freedom, it has unlocked my future and has given me health that I haven’t experienced since I was a college freshman. In the days after dosing, I was out of the house, able to work, able to travel, and able to go back to school. But you know all that. If...
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You can definitely put me into the worried and stressed categories when we’re talking about COVID-19. Things are happening crazy fast. At times it feels like the global medical infrastructure to fight this thing is buckling beneath the pressure, but then a moment later a new paper is published citing the efficacy of some repurposed...
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Yesterday I got an email from my CF center in New York City saying telehealth services are beginning to role out for patients who don’t want to come to the clinic. The clinic hadn’t yet recommended against coming in for visits, but it certainly felt that may one day be a possibility in the very...
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Last week I naively asked, “Will we fall victim to healthcare rationing?” This week it seems like that’s the question global experts are asking, too. The thing that scares me most about the coronavirus outbreak is the potential for an indefinite period of time where every day health services could be out of reach. Yes,...
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