We Have Responsibilities That Extend Beyond Our Health

We’re human beings, we have responsibilities – they extend beyond our health. We work, we have families, friends, hobbies, and obligations. We have lives outside of cystic fibrosis. My newest responsibility is my puppy, Blink. Blink is a Jack Russell Terrier (or so we think), and she’s absolutely taken over the house. We have another...
Continue reading...

The Internet Thinks I Might be Dead

Apparently the Internet thinks I might be dead, and I think that’s hilarious. Like any normal person, I was Googling myself and this came up…. Suggested searches are my favorite searches. The answer for those of you keeping score at home is, YES, I am still alive. I suppose some people come across the old...
Continue reading...

What I’ve Learned From Others with CF

May is Cystic Fibrosis Awareness Month – everything has a month or week these days – and rather than writing about myself, how much time I’ve spent doing treatments, why we need to balance drug development with disease maintenance, and something super cliché, I’m going to talk about what I’ve learned from some of the...
Continue reading...