Do You Have a Nonsense Mutation?

I guess a better question is…. Do you (or does your child) have a nonsense mutation? If the answer is yes – whether it’s a single nonsense mutation or a pair – the Patient Registry over at Emily’s Entourage (EE) is for you! Not to be confused with the Cystic Fibrosis Foundation’s Patient Registry, the...
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Pharmacy Benefit Managers In the Spotlight

I am not someone to speak highly of our federal government, regardless of who is in power, but I don’t think I have ever felt so proud of our elected officials. Yesterday, the Senate Finance Committee, in a bipartisan effort, led by chairman Chuck Grassley (R-Iowa) and ranking member Ron Wyden (D-Oregon) called executives from...
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I Am Going Back to School!

I am going back to school, and it’s just starting to feel like real life. Within the past couple of weeks I was accepted into the MBA program at the Tuck School of Business at Dartmouth and the MPH (Masters of Public Health) program at The Dartmouth Institute For Health Policy and Clinical Practice. As...
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