We MUST Preserve the Orphan Drug Tax Credit

I’m not one for waving a political flag on my blog too often, but this is very important. With tax reform under the microscope on capital hill, one very important piece of legislation is coming to the chopping block – The Orphan Drug Act. From Investopedia: “[The Orphan Drug Credit is] A federal tax credit...
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My Running Journey 11 – 4 Workouts Left!!!!

I am quickly approaching the finish line. Well… I guess “quickly” isn’t the correct word, since I’m not moving anywhere quickly. My conditioning is definitely improving – my legs feel pretty good when I am getting through my runs. I am beyond walking at this point. If I were to constructively criticize the app, I’d...
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Good Job, Delta… Good Job

As it turns out… the friendly skies are, in fact, friendly. This past weekend I was in Cincinnati for a Cystic Fibrosis Education Day, and since I didn’t feel like walking there from New York, I flew. If you follow my blog, you know that flying with cystic fibrosis isn’t the most fun thing in...
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My Running Journey 10 – Catching Up

I missed my running blog post last week. It was kind of a crazy week, I just started my high school hockey season, so I haven’t had as much time to write as I normally do. For those of you who are on the edge of your seats waiting for my weekly running post, I’m...
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It’s Time to Start Targeting Smokers

Smoking is a problem. Cigarettes are disgusting and smoking them is a habit that doesn’t benefit anyone. It’s not surprising that cigarettes really bother me. In fact I’ve blogged about the topic before, but I think it’s time to revisit the subject especially since cigarette smoking is back in the news. The National Health Service...
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