Address the Unseen Scars: Mental Health and Cystic Fibrosis

I am reblogging this article that I wrote for Emily’s Entourage, which originally appeared HERE. What is Emily’s Entourage? “Emily’s Entourage accelerates research and drug development for nonsense mutations of Cystic Fibrosis. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. [Their] goal...
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Parents, It’s Okay to Let Your Kid Grow Up

Shifting age appropriate responsibilities from the parent to the child always seems to be a difficult task for cystic fibrosis families. It’s a slow methodical process that seems to work at a snail’s pace. I think it’s due in large part to the dreaded drop that many young adults are forecasted to face. This week...
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The 5 Greatest Achievements in Cystic Fibrosis

The story of cystic fibrosis is quickly becoming one of the greatest success stories in medical history. That is a hell of a statement given not so long ago, a lot of what we have today would have only been a mere pipedream. We still have a long way to go, but if the recent...
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My Message to the St. Louis University School of Medicine Class of 2019: Listen to Your Patients!

This past weekend I was honored to deliver the 2019 St. Louis University School of Medicine Pre-Commencement address. My very first pediatric doctor at Cincinnati Children’s Hospital, Robert Wilmott MD, is now the acting dean at the SLU School of Medicine and extended the invite to me not long ago. I so very much appreciate...
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