Summer is right here…. We’re on the doorstep! But first… some thoughts. The Royal Wedding So I made a Facebook post over the weekend about the Royal Wedding… …and may have created quite the uproar (on Twitter too). Friendly reminder that the UK will pay for a #RoyalWedding but won’t fund life changing cystic fibrosis...
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We’re human beings, we have responsibilities – they extend beyond our health. We work, we have families, friends, hobbies, and obligations. We have lives outside of cystic fibrosis. My newest responsibility is my puppy, Blink. Blink is a Jack Russell Terrier (or so we think), and she’s absolutely taken over the house. We have another...
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Apparently the Internet thinks I might be dead, and I think that’s hilarious. Like any normal person, I was Googling myself and this came up…. Suggested searches are my favorite searches. The answer for those of you keeping score at home is, YES, I am still alive. I suppose some people come across the old...
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This installment is coming at you from sunny (read: rainy) Florida! Sterilizing Nebs on the Go It’s been awhile since I’ve taken a vacation longer than a long weekend, maybe 3 years or so? With any extended vacation comes the question of how many neb cups am I going to take and how am I...
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A few of my thoughts to help you get this week rolling! Telemedicine I posted about a link about telemedicine last week on my Facebook page and it created quite the conversation in the comments: We’re stepping into the future with this… it’s starting to happen, and some CF clinics are actually rolling it out....
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May is Cystic Fibrosis Awareness Month – everything has a month or week these days – and rather than writing about myself, how much time I’ve spent doing treatments, why we need to balance drug development with disease maintenance, and something super cliché, I’m going to talk about what I’ve learned from some of the...
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I’m launching a new blog series today – Monday Morning Thoughts (title subject to change…). I plan to use this space to take short little jabs (read: give opinions) at various topics from the past week or from questions in my Inbox. I think it will evolve over time to be more wide ranging as...
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