Learning How to Live

I have been trying to figure out how to write this blog ever since Trikafta was approved by the FDA, really ever since I started feeling better on the drug, and have admittedly struggled to do so. But when I opened up my email this morning, I saw a blog inquiry from a reader asking...
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Trikafta is Shipping!

This is mostly a PSA for anyone who may need to hear it, or being told anything else… Trikafta is shipping!  I have spent most of my morning watching videos across my social media timelines of people with CF taking their first doses and it’s giving me goosebumps. What a time to be alive! Feel...
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My Time in the Triple Combo Study

In no small way has the triple combo completely changed my life. The first few weeks of the study were some of the most powerful of my life. My lung function seemingly skyrocketed over night, I suddenly felt like I had more energy than an Olympic athlete in the prime of his career, and the...
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Fall A Term: A Lot of Work, A Cold and More Fun

After three months of living in the woods I am back home for Fall break! I have officially survived the first term of my MBA program. Small victories, right? Living in Hanover has been equal parts fun, exhausting, challenging, exciting and stimulating. To say that I was nervous before starting a residential graduate program back...
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