It’s Amazon Prime Day! It’s also a Monday… so let’s jump into it! How I Organize My Pill Case When it comes to the way I organize my daily medications, I don’t use a weekly pill set up. I use a daily organizer. I suppose I find myself in the minority here since most people...
Continue reading...
A discussion in the comments on one of my Facebook posts from the other day highlighted an interesting (and often overlooked) part of the cystic fibrosis world – people have very different individual needs. Here are some of the comments: Ultimately the topic here is the ACA – Affordable Care Act (Obamacare). We’ll touch on...
Continue reading...
The “Great Pfizer Drug Pricing Saga of 2018” looks to be coming to a close! We’re operating outside the realm of cystic fibrosis here, but I think this is a pretty wild story in the healthcare sector… one I think may or may not have an impact on us somewhere down the line. The past...
Continue reading...
Another Monday, another Monday Morning Thoughts… My First Intestinal Blockage The respiratory side of cystic fibrosis gets most of the play, but I think the GI side is arguably worse. I’ve had my fair share of GI issues over the years from pancreatic insufficiency, to acute pancreatitis and 7 years (and counting) of g-tube feeds....
Continue reading...
We are in desperate need of new antimicrobials to combat the growing threat of drug resistant bacteria. I think the majority of the governments in industrialized nations recognize this threat and are finally starting to mobilize against it. As it currently stands, though, there is little incentive for drug makers to dive into the antibiotic...
Continue reading...
Patients are the ends to the means in chronic illness. Every single thing that happens in cystic fibrosis (specifically) – from research, fundraising, drug development, policy decisions, conversations, to treatment time and everything in between – revolves around the patient. It is a delicate system that can ruin a life or, when working properly, save...
Continue reading...
Here we are! The first Monday of July! Today I’ve got some advice for parents. Coming Home From the Hospital The transition back to normal life from an extended stay in the hospital, or really even just a course of IV’s at home, is easier said than done. I always like to look at courses...
Continue reading...
