People say, “I don’t know what I’d do without you.” I can’t relate to that line. You see, I know exactly what I’d do if the unthinkable happened to Gunnar. I would listen to every episode of Breathe In: A Cystic Fibrosis Podcast over and over to hear his voice. I would try to read...
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Lea slid into my DMs about two and a half years ago asking if I’d be willing to help her with a video she was making for Tiffany Rich’s transplant recovery. Lea’s best friend was in a dire situation and all she wanted to do was help. Little did I know that would be the...
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It took me a long time to realize that my parents are humans. As a kid, I never saw either of my parents cry. I never really saw them argue, either. They seemed impervious to the roller coaster of emotions I experienced as a typical child. When my Dad’s grandmother died when I was 12,...
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As empowered patients, it is our jobs to work with our care teams, not blindly take their word as fact. The very best doctors in CF are the ones who listen to their patients and create plans with them. I learned this lesson the hard way when I was in pediatrics. My final year as...
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Happy Monday, folks! It’s been a hot minute since we’ve had a Monday Morning Thoughts blog post, but it happens. What can I say? Chronic infection is a killer in cystic fibrosis. It’s widely accepted that although infection rates are slowly decreasing across the community (maybe thanks to kids getting on CFTR modulators before their...
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Inpatient care is like the bane of my existence. I’ve landed myself in the slammer for a number of different reasons over the years – from emergencies, like flulike viruses and pancreatitis, to planned stays for observation. Each experience sheds a new light on the inadequacies of inpatient life for people living with cystic fibrosis....
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Darcy takes over the annual gift guide this year! Make sure you select the BOOMER ESIASON FOUNDATION if you’re using Amazon Smile. Amazon will donate a portion of their revenue from each Amazon Smile sale to BEF! Do you have a loved one on your holiday shopping list who has a chronic illness? This gift...
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