I have been trying to figure out how to write this blog ever since Trikafta was approved by the FDA, really ever since I started feeling better on the drug, and have admittedly struggled to do so. But when I opened up my email this morning, I saw a blog inquiry from a reader asking...
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This is mostly a PSA for anyone who may need to hear it, or being told anything else… Trikafta is shipping! I have spent most of my morning watching videos across my social media timelines of people with CF taking their first doses and it’s giving me goosebumps. What a time to be alive! Feel...
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In no small way has the triple combo completely changed my life. The first few weeks of the study were some of the most powerful of my life. My lung function seemingly skyrocketed over night, I suddenly felt like I had more energy than an Olympic athlete in the prime of his career, and the...
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We’re going to start off today’s blog with an unfortunate truth… Medical centers are often just as dangerous as they are helpful. In fact, in a 2016 article, the British Medical Journal claimed that Medical Error is the 3rd leading cause of death in the United States. I am witness to errors all the time,...
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After three months of living in the woods I am back home for Fall break! I have officially survived the first term of my MBA program. Small victories, right? Living in Hanover has been equal parts fun, exhausting, challenging, exciting and stimulating. To say that I was nervous before starting a residential graduate program back...
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It’s flu shot szn! Time to get out there and do your civic duty (read: don’t be a public health menace). The flu is much more than some sneezing and coughing. It could mean time in the hospital, time away from work and time away from your friends. via GIPHY The flu shot reaches maximum...
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Last week was my first round of midterms and it took a lot out of me. Beyond the midterms I had two group projects, a lot of late nights with my study group, quite a few early mornings prepping and keeping up with treatments, and a visit from some college buddies (pictured above). The hellish...
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