Mental Health is sort of the hot button topic in the CF world these days. Finally… I might add. It seems like just within the last few years someone, somewhere was like, “you know what… all these families might be dealing with some issues from the stresses and anxieties that go along with rigorous daily...
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I got an interesting question from the audience at my CF Family Education Day talk last weekend – “What roles do your parents play in your fight against CF now that you’re an adult?” The short answer is that both of my parents are still very involved. My mom remains my first line caregiver in...
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“A Quiet Place” is charging through the box office having grossed nearly $100,000,000 over its two week run. It’s a big movie. It’s also an entertaining movie…sort of a “humans vs. monsters” thriller. The premise is that a group of post-apocalyptic survivors try to continue life in a world where (pretty stupid looking) monsters are...
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I love this new world we live in where everything offends someone. Pretty soon our dictionary is going to be limited to about 17 approved words, and it’s going to be hilarious. If you were keyed in on the news yesterday you might have come across this story about a mother and her young daughter...
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As it would turn out, people don’t like spending time in the hospital, which is probably the least shocking thing I’ve ever heard in my life. So here we are, another day… another caregiver feeling inconvenienced. I Came across an op-ed over on HuffPost, “Long Hospital Stays Don’t Affect Only The Patient” and wouldn’t you...
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Welp… now that the Cystic Fibrosis March Madness Bracket is over we can talk about some of the glaring issues that people have when living with CF. That’s right! We’re living in the age of data and information collection, and your stuff has just been collected! Just kidding… but I think we should look at...
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After weeks of voting, far too much sweat and a few tears, we have a winner! Coughing is going home with the title of “the most annoying part of living with cystic fibrosis!” Congrats to coughing for all its hard work this season. A well deserved title. Here’s the voting breakdown: #1 Coughing 62.9% –...
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