Cystic Fibrosis Around the World continues with a trip to Sweden! I’m super excited to be including Sweden in this series. My family has ties to Scandinavia – both Norway and Sweden (you could probably guess that by my name – Gunnar), something we take great pride in, so I was happy that Lisa reached...
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Cystic Fibrosis Around the World continues with a stop in Brazil. Today you’ll meet Verônica Stasiak Bednarczuk de Oliveira. She is 30 years old living with cystic fibrosis and a very important advocate for people living with CF in Brazil. I’d like to thank Verônica, her organization, Unidos pela Vida, and Cristiano Silveira (a CF parent from Rio de...
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Today’s interview comes from our first participant who is post double lung transplant. Luke Doherty is also Team Boomer‘s athlete of the month for August. He joined the Making it Matter podcast as well, have a listen HERE. Dublin, Republic of Ireland, Luke Doherty, 26, living with cystic fibrosis. About how many people in your...
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We are back in the Middle East for another Cystic Fibrosis Around the World blog. Please note that the brackets [] indicate an edit I made for spelling or language. Beirut, Lebanon, Anonymous Adult living with cystic fibrosis. About how many people in your country have cystic fibrosis? No one I know, but I guess...
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Cystic Fibrosis Around the World returns with an interview coming to us from France! As always, if you or someone you know living abroad with cystic fibrosis would like to be included in #CFAroundTheWorld get in touch with me at [email protected] I will be featuring several countries new to the blog series once a week over...
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Throughout the second half of May I ran my Cystic Fibrosis Around the World blog series. My goal behind the project was to compare the “patient” experience among people living with CF across the globe and learn about the different types of care offered. It was really a culmination of many weeks of interviews and...
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Here we are, back home in the United States. I hope this blog post is really as informative for our international followers as it is for people living across the US. I think it would be irresponsible of me to say that two interviews could represent the feelings of all the people living with CF...
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