We head back to Europe for this installment of Cystic Fibrosis Around the World. Today we meet Clara, she is 16 years old living with cystic fibrosis and heading towards the transplant list. Clara offers fantastic commentary for the state of things for people with CF living in Italy. [brackets indicate an edit for translation]...
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Cystic Fibrosis Around the World heads back to the Middle East to talk to an adult living with CF in Jordan! Again… thanks to the Middle East Cystic Fibrosis Association for helping to make this connection! We did have a pretty significant language barrier throughout this interview. Yazan had to use a translator program, so...
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Cystic Fibrosis Around the World continues with an interview from Pakistan! I’d like to give a special shout out to the Middle East Cystic Fibrosis Association for helping out with this project! The MECFA has played a significant role in connecting me with patients from the Middle East so that we can share more and...
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Cystic Fibrosis Around the World continues with a trip to Sweden! I’m super excited to be including Sweden in this series. My family has ties to Scandinavia – both Norway and Sweden (you could probably guess that by my name – Gunnar), something we take great pride in, so I was happy that Lisa reached...
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Cystic Fibrosis Around the World continues with a stop in Brazil. Today you’ll meet Verônica Stasiak Bednarczuk de Oliveira. She is 30 years old living with cystic fibrosis and a very important advocate for people living with CF in Brazil. I’d like to thank Verônica, her organization, Unidos pela Vida, and Cristiano Silveira (a CF parent from Rio de...
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Today’s interview comes from our first participant who is post double lung transplant. Luke Doherty is also Team Boomer‘s athlete of the month for August. He joined the Making it Matter podcast as well, have a listen HERE. Dublin, Republic of Ireland, Luke Doherty, 26, living with cystic fibrosis. About how many people in your...
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We are back in the Middle East for another Cystic Fibrosis Around the World blog. Please note that the brackets [] indicate an edit I made for spelling or language. Beirut, Lebanon, Anonymous Adult living with cystic fibrosis. About how many people in your country have cystic fibrosis? No one I know, but I guess...
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