We are back with another interview thanks to our friends at CF Europe! Sarajevo, Bosnia and Herzegovina, Emina, 24 living with cystic fibrosis About how many people in your country have cystic fibrosis?50 (42 children and 8 adults) Do people in your country know what CF is? I think most of them don’t know, and...
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After a lengthy pause, Cystic Fibrosis Around the World returns with some help thanks to our friends at CF Europe. Cystic Fibrosis Around the World is the longest standing series on the blog. It started in the beginning of 2017 with the goal of showing our mostly North American audience how CF is cared for...
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We head back to Europe for this installment of Cystic Fibrosis Around the World. Today we meet Clara, she is 16 years old living with cystic fibrosis and heading towards the transplant list. Clara offers fantastic commentary for the state of things for people with CF living in Italy. [brackets indicate an edit for translation]...
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Cystic Fibrosis Around the World heads back to the Middle East to talk to an adult living with CF in Jordan! Again… thanks to the Middle East Cystic Fibrosis Association for helping to make this connection! We did have a pretty significant language barrier throughout this interview. Yazan had to use a translator program, so...
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Cystic Fibrosis Around the World continues with an interview from Pakistan! I’d like to give a special shout out to the Middle East Cystic Fibrosis Association for helping out with this project! The MECFA has played a significant role in connecting me with patients from the Middle East so that we can share more and...
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Cystic Fibrosis Around the World continues with a trip to Sweden! I’m super excited to be including Sweden in this series. My family has ties to Scandinavia – both Norway and Sweden (you could probably guess that by my name – Gunnar), something we take great pride in, so I was happy that Lisa reached...
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Cystic Fibrosis Around the World continues with a stop in Brazil. Today you’ll meet Verônica Stasiak Bednarczuk de Oliveira. She is 30 years old living with cystic fibrosis and a very important advocate for people living with CF in Brazil. I’d like to thank Verônica, her organization, Unidos pela Vida, and Cristiano Silveira (a CF parent from Rio de...
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