Please Don’t Ever Complain

Like many Americans this past weekend, I found my way to somewhere warm with friends and family. Unlike many Americans, though, I found myself in the middle of a two-week tune up. For those of you keeping score at home, a tune up is when people with CF go on IV antibiotics to treat a...
Continue reading...

I Got a Vitamix

Buckle up… this is my first independent (that’s a key word indicating a theme, pay attention) review of a product. For those of you keeping score at home that means this is not a paid endorsement, rather it’s pure euphoria (for me). This past weekend, I got a Vitamix and I revolutionized my feeding tube...
Continue reading...

Five Years

This May marks five years since I had my feeding tube placed, or to put it another way, my G-tube has been with my for 1/5 of my life. It’s a strange thought. For years I rejected the idea of having a feeding tube – it just never appealed to me during my high school...
Continue reading...

Seeing the Future

When dealing with a chronic illness, whatever it may be, there is a degree of uncertainty that can often be blinding. At times, it can seem impossible to see the future. As a kid, this isn’t really something that would have crossed my mind. Growing up, my teachers and coaches at every level of education...
Continue reading...