It is Okay to Ask for Help!

Last week Julia Rae and I invited Marge Carfora, 34 with cystic fibrosis, onto the Making it Matter Podcast to talk to her about her amazing path through life 13 years post double lung transplant. Since being transplanted near the turn of the millennium, Marge has faced a number of complications associated with post transplant...
Continue reading...

Do People With Cystic Fibrosis Experience FOMO?

Full disclosure here; I’m writing this while doing my treatments. In fact, I just stuck a syringe into a vial of sterile water, drew some out and then injected it into vial containing powdered medicine. Chemistry. I was snowed in last Thursday, so I found myself involved in a live Twitter Q&A with the Dana-Farber...
Continue reading...

On Spitting

Spitting is gross. It is rude, unhealthy and socially unacceptable (in public places at least). Spitting is kind of like wetting the bed. People wet the bed when they are kids, college age and then when they are like 105, because I guess at that point no one really gives a shit. Spitting falls into...
Continue reading...

How I Get Past a First Impression

If I don’t have an answer to a question, a definition to a word or a way to solve a problem, my first instinct is to go to the Internet like anyone living in the age of information. If you ask the Internet a question, you’ll get an answer (right or wrong). So what happens when...
Continue reading...