Making it Matter Ep. #49 – #24hrs4cf

Josh Lewellyn-Jones joins the podcast again to recap his 24 hour fitness challenge. He talks about the amazing reach his event had, over 8 million people worldwide, coupled with his platform moving forward. Thanks to the event’s success he is launching Team 24/7 as well as a charity CF Warriors, which are efforts to help motivate people to use exercise to redefine their lives. Finally Josh teases next year’s fitness event, which is an attempt at a fitness world record....
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Making it Matter Ep. #46 – The Salt Cysters

Aleeya and Alani Young, 18 year old twins battling cystic fibrosis, and better know as the Salt Cysters, join the podcast to talk about their lives with cystic fibrosis. Recent high school graduates, they discuss some of their ambitions, including both of them heading off to the University of Cincinnati in the Fall. They’ve created the Salt Cysters YouTube channel which aims to raise some awareness for CF, show how they are able overcome adversity and life a healthy lifestyle....
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Making it Matter Ep. #45 – Double-Lung Transplant, Fitness and Cystic Fibrosis in Ireland

Julia and I welcome Luke Doherty, 26 with cystic fibrosis from Dublin, Ireland, to the podcast this week. Luke talks his recent journey through a double lung transplant, which has needed to include chemotherapy treatment for PTLD. To that end, we talk about some of the differences between the American and Irish transplant listing procedures. Luke mentions that despite his failing health prior to transplant, he made fitness a priority in his life and he ultimately credits that to an initial speedy recovery. As you will find out, fitness is a major part of his life, to the point where it serves as a way for him to find a release from the challenges of CF. Luke is still very much in recovery from his transplant thanks to the PTLD, but he is making strides everyday to return to his life as a personal trainer....
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Making it Matter Ep. #44 – International Travel with CF

Today we meet Rachael Russell, 22 living with cystic fibrosis. She is also a recent graduate of Duquesne University and 2x winner of a Boomer Esiason Foundation. Since graduating college, she fulfilled a a dream of backpacking through Europe for a month she will never forget. Rachael discusses packing for such a long trip, working around electric conversion for her Vest, concerns her family and medical team held and ultimately why she took the trip! She mentions that while not plan runs perfectly, sometimes jumping in and taking a risk is all we can do! Check out Rachael’s travel blog here: https://cftraveler.wordpress.com...
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Making it Matter Ep. #43 – Our College Roommates

Julia and I invited on a couple of our old college roommates, Carmen Gatta and Miranda Borkan, on the podcast so they could give their perspective on living with someone who has CF. Carmen lived with me for three years, my sophomore, junior and senior years at BC. I met Carmen my freshman year when he lived across the hall from me and my buddy from high school, David. I felt that I wanted as typical a college experience as possible, and for that reason I lived with roommates all four years of school, including my freshman and sophomore years when I had a direct roommate (my friend David from high school). Julia on the other hand had a little bit different of an experience. She went into the roommate pool her freshman year and was assigned a suite with random roommates. So while she didn’t have a direct roommate, she shared a living space with three people she hadn’t met prior to enrolling into Fordham University. Miranda was one of those roommates and turned out to be one of her best friends!...
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Making it Matter Ep. #41 – Being a Mother With Cystic Fibrosis

Sabrina Smith-Walker, 30 with cystic fibrosis from Alaska, joins the podcast. Her story is nothing short of amazing. After graduating high school she was diagnosed with cancer, which she went on to beat. From there she talks about her marriage and healthy lifestyle. Ultimately the podcast settles into Sabrina talking about her being a loving mother to her two year old son. She takes us through her conversations with her doctors, the pregnancy and finally her evolving routine as both a mom and CF patient. She notes that none of this would be possible without her incredible support system for which is so very grateful!...
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Making It Matter Ep. #40 – Coming to Grips With A Terminal Illness

There is no cure for cystic fibrosis, and it is a fact that we cannot hide from. Julia and I recently received a question from the mother of a young boy with CF about the topic. While I’m not sure there really is a “right” or “wrong” way to discuss the disease’s ugly side, I am confident in the idea that taking it head on is the best way to go about it. Julia and I discuss a few different strategies we have when it comes to dealing with the terminal side of CF....
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