Breathe In is back after a brief end of summer hiatus! Lea finds herself on IV’s to start up September, so the trio talks about some of their experiences with home IV’s. Home IV’s can seem complex and overwhelming especially for patients and families who haven’t yet developed a routine for recurring pulmonary exacerbations. Gunnar...
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Darcy, a mental health professional (who happens to be dating Gunnar), joins Lea and Tiffany on the podcast this week to talk about mental health in the cystic fibrosis patient population. The podcast starts with memories to childhood when mental health was overlooked within cystic fibrosis. The conversation turns to PTSD, traumatic procedures and operations...
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Katie Fielding, 37 with cystic fibrosis and 15 years of experience in public education, joins the podcast to talk back to school! Katie offers advice on 504 plans, disability protections and gives some insight on why teachers want to do whatever it takes to see their students succeed. Gunnar offers input about some positive and...
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Hannah Buck, 23 with cystic fibrosis and entering her final year at University of Michigan, joins the the trio to talk about how she had to learn how to prioritize her health after a number of troubling health issues early on in her college career. She thinks that some of her problems were revolving around...
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The trio builds off a topic from last week about changing the way things are done in CF clinics. The episode starts off with Gunnar, Tiffany and Lea running through a typical appointment at their respective CF clinics. Lea notes Hopkins’ outdated way of doing things, and marshaling patients through a series of waiting rooms...
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With the trio reunited, Gunnar and the Salty Cysters take on some Taboo Topics in the CF World. Tiffany recounts a powerful moment before her transplant surgery when she was faced with coming to grips with a life changing surgery or immediate demise, while the Gunnar and Lea talk about some fears associated with Death....
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Filling in for Gunnar, Somer Love returns to the podcast and joins the Salty Cysters in a chat about social media in the cystic fibrosis community. They dive into why they use social media, how it has helped CF communication and friendships, and the positive influences it has brought to all three of them. Whether...
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