Making it Matter Ep. #12 – Cystic Fibrosis Siblings

Each month we are going to invite a guest with cystic fibrosis to join the program to share how he or she is Making it Matter. This week, Julia invites her brother Will, 26 with cystic fibrosis, onto the podcast to discuss growing up together and their training for the New York City Marathon. Both Julia...
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Making it Matter Ep. #11 – This Past Week

Julia and I catch up with each other about the last week. I had an encounter with a security guard at a concert over my pill case, Julia talks about her New York City Marathon training and then we both give our opinion on my blog post about cigarette smoke. This is a bit of...
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Making it Matter Ep. #10 – CF Nutrition

Nutrition is something I love to talk about (well…. ever since I got my feeding tube placed in 2011). It is a vital part of CF care, something that Julia and I approach differently. While my pancreas doesn’t seem to work, Julia knows she is pancreatic sufficient, something that isn’t unheard of, but not typical....
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Making it Matter Podcast Ep. #9 – Flu Season

Flu season is just about here so Julia and I talk about the important fine line between being prepared and making sure we don’t find ourselves living in a bubble. We also discuss our incredibly different experiences with the flu shot (I really have no excuse for being totally terrified of it), and how we...
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