Making it Matter Ep. #10 – CF Nutrition

Nutrition is something I love to talk about (well…. ever since I got my feeding tube placed in 2011). It is a vital part of CF care, something that Julia and I approach differently. While my pancreas doesn’t seem to work, Julia knows she is pancreatic sufficient, something that isn’t unheard of, but not typical....
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Making it Matter Podcast Ep. #9 – Flu Season

Flu season is just about here so Julia and I talk about the important fine line between being prepared and making sure we don’t find ourselves living in a bubble. We also discuss our incredibly different experiences with the flu shot (I really have no excuse for being totally terrified of it), and how we...
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Making it Matter Ep. #6 – Back to School

Summer is coming to a close (sad face, sad face). It’s time to start thinking ahead! Listen to Julia and I share our experiences from all levels of our schooling and give a few tips about we were able to succeed! I think it’s important to make sure that a little boy or girl with...
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Making it Matter Ep. #5 – Staying Motivated

In episode 5 of the Making it Matter podcast series, Julia and I discuss our strategies for staying motivated through the good days and bad. I think it’s important to stress for as much as CF may be similar across the entire patient population, we all have our own ways of dealing with it. From...
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