Breathe In Ep. #12 – Finding Positivity in Cystic Fibrosis

Gunnar, Tiff and Lea talk about finding positivity in illness. Cystic fibrosis is a constant uphill battle, and the stress of constant adversity certainly is taxing, but the trio discussing points of motivation throughout their paths with chronic illness. Tiffany talks about her “weekly events” that she planned for herself when she was in end-stage...
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Breathe In Ep. #11 – Nutritional Care

The trio talks about the evolution of cystic fibrosis nutrition. The podcast starts with the group talking about the “old days” of CF nutrition when any and all high calorie diets were pushed on patients. Tiffany talks about daily trips to In-N-Out burger, while Gunnar and Lea talk about after school milkshakes. The trio then...
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Breathe In Ep. #10 – Staying Compliant with Treatments

We take a question from a CF mom who asks, “how can I convince my kid of the importance of staying compliant with his treatments?” The episode starts off with the big topic, “were we compliant as kids?” Ultimately we determine that CF treatments have evolved so much since the early 90’s that it’s tough to...
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Breathe In Ep. #9 – Tiffany’s 1 year “Lungiversary”

Tiffany celebrates the first anniversary of the double lung transplant, or her “Lungiversary” as she calls it! She takes us through the day she received “the call,” which was actually her first call for transplant after several years of waiting on the transplant list, from waking up around 2am to her hospital discharge – about...
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Breathe In Ep. #8 – Living at Home

The trio talks about something that many people living with chronic illness have to cope with… living at home. While living at home with parents brings with it many pros, there are certainly some parts of it that seem unnatural to an adult in his or her mid to late 20’s. Gunnar and Lea talk...
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Breathe In Ep. #7 – Coping with Disease Progression

Tiffany tells the group about the emotional roller coaster that was waiting on the lung transplant list. It spurs the conversation about dealing with disease progression. The trio then discusses the “one moment” that generally befalls a CF patient where his or her health really takes a turn. Lea says that her “moment” was a...
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Breathe In Ep. #6 – Cystic Fibrosis Friendships

In response to my blog about friendships between people living with cystic fibrosis the trio discusses some of the pros and cons of such relationships. Tiffany and Lea dive into the start of the Salty Cysters, how they met and why they’ve decided to share their stories on social media, as well as all of the...
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