Breathe In Ep. #9 – Tiffany’s 1 year “Lungiversary”

Tiffany celebrates the first anniversary of the double lung transplant, or her “Lungiversary” as she calls it! She takes us through the day she received “the call,” which was actually her first call for transplant after several years of waiting on the transplant list, from waking up around 2am to her hospital discharge – about...
Continue reading...

Breathe In Ep. #8 – Living at Home

The trio talks about something that many people living with chronic illness have to cope with… living at home. While living at home with parents brings with it many pros, there are certainly some parts of it that seem unnatural to an adult in his or her mid to late 20’s. Gunnar and Lea talk...
Continue reading...

Breathe In Ep. #7 – Coping with Disease Progression

Tiffany tells the group about the emotional roller coaster that was waiting on the lung transplant list. It spurs the conversation about dealing with disease progression. The trio then discusses the “one moment” that generally befalls a CF patient where his or her health really takes a turn. Lea says that her “moment” was a...
Continue reading...

Breathe In Ep. #6 – Cystic Fibrosis Friendships

In response to my blog about friendships between people living with cystic fibrosis the trio discusses some of the pros and cons of such relationships. Tiffany and Lea dive into the start of the Salty Cysters, how they met and why they’ve decided to share their stories on social media, as well as all of the...
Continue reading...

Breathe In Ep. #5 – Relationships

Gunnar, Tiffany and Lea talk about relationships! Cystic Fibrosis can complicate committed relationships, and force a significant other to make sacrifices. The trio chat about their experiences with relationships and some of the things boyfriends or girlfriends have done to boost their support systems. They also talk about milestones and vulnerability, like doing treatments in...
Continue reading...

Breathe In Ep. #4 – Dating

Dating! The trio talks about how cystic fibrosis may complicate things in a person’s dating life. From social acceptability, telling someone new about the disease to the visual appearance of g-tube or medi-port, dating with CF can bring about some awkward moments. Gunnar tells the story of a time when his feeding tube exploded in...
Continue reading...