Getting Comfortable with a New CF Clinic

All throughout my life, I have sought CF care from a number of clinics simply because I have lived in a bunch of different places. Experience tells me that transitioning from clinic to clinic is equal parts awkward, uneasy, exciting, refreshing and hopeful. When I was little, I started my CF journey at Cincinnati Children’s...
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Stop Calling Me a “Fibro”

Today, folks, we’re going to talk about labels and why they’re bad.  The terms “fibro” “cyster” and “CFer” are all labels that get tossed around the CF community. I don’t like them. In fact, I feel second hand embarrassment when someone uses any of the above to describe other people with CF. In a world...
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I Am Going Back to School!

I am going back to school, and it’s just starting to feel like real life. Within the past couple of weeks I was accepted into the MBA program at the Tuck School of Business at Dartmouth and the MPH (Masters of Public Health) program at The Dartmouth Institute For Health Policy and Clinical Practice. As...
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In Case of Emergency

Let’s talk about medical alert tags. I wanted to get one for a while, but never got around to it until Darcy decided to take it upon herself to get one for me. She got me one in the style a dog tag for Christmas. If you didn’t already know, I’m a big Top Gun...
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