When dealing with a chronic illness, whatever it may be, there is a degree of uncertainty that can often be blinding. At times, it can seem impossible to see the future. As a kid, this isn’t really something that would have crossed my mind. Growing up, my teachers and coaches at every level of education...
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It seems like I get an email just about every week from a parent telling me that his or her child has just been diagnosed with the cystic fibrosis. The tone of each email is the exact same. There’s some mix of confusion, frustration, anger, sadness and determination. I sympathize with parents who find out...
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Cystic fibrosis is a major emotional burden; there is no disputing that. I think sometimes what comes of the emotional stress is a hesitancy for people to really open up about CF. Too often do I talk to people with CF only to find out that they aren’t very open about their disease. Now, I...
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I have heard a lot of people try and give a concise explanation of cystic fibrosis – hell, I’ve even tried to do it here with this blog. It’s not the easiest thing in the world to do given the disease’s complexity. There was one time, though, that a nurse said to me “well, you...
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