I’ll Never Forget You, Lea

In October I gave a community wide talk about cystic fibrosis at Tuck where I mentioned Lea and her impact on not only my life, but also the cystic fibrosis community. I had been at school a mere two and a half months at that point, and I can tell you that I don’t think...
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Learning How to Live

I have been trying to figure out how to write this blog ever since Trikafta was approved by the FDA, really ever since I started feeling better on the drug, and have admittedly struggled to do so. But when I opened up my email this morning, I saw a blog inquiry from a reader asking...
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My Time in the Triple Combo Study

In no small way has the triple combo completely changed my life. The first few weeks of the study were some of the most powerful of my life. My lung function seemingly skyrocketed over night, I suddenly felt like I had more energy than an Olympic athlete in the prime of his career, and the...
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