Making it Matter Ep. #50 – Claire’s Place

Claire Wineland, 20 with cystic fibrosis from California, joins the podcast to talk about her life with CF. After some significant health issues, Claire found that her calling in life was to do all she could to help people, so she started Claire’s Place Foundation in the hopes of helping people with CF directly. Since...
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My Running Journey – Day 1

So I went for a run today, and let me tell you….. I f*cking hate running. If you know me, then you know running is the bane of my existence, probably to the point where I’d rather stab my eyeballs out than go running. But I went for a run, and I actually kind of...
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My Response to Some Gene-Editing Naysayers

As I sat in my “treatment” chair this morning, sucking down some medication and shaking in my Vest, I came across an article that shows us the debate over the ethics surrounding CRISPR-Cas9 has not only begun, but is also alive and well. I wrote about CRISPR last week, albeit in a satirical tone, and praised...
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Making it Matter Ep. #49 – #24hrs4cf

Josh Lewellyn-Jones, 30 with cystic fibrosis, joins the podcast again, this time to recap his #24hrs4cf fitness challenge, which was a massive success. Josh mentions that while he was able to fundraise quite a bit for the Cystic Fibrosis Trust in the UK, it was nothing compared to the awareness raised around the event. Over...
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Making it Matter Ep. #48 – Chronic Rejection

Travis Flores, 26 with cystic fibrosis, joins the podcast to talk about his life with CF, journey through double lung transplant and now his battle with chronic rejection. Travis has been active in advocacy for people with CF and organ transplant, as well as a successful actor/writer/producer. He recently launched a blog, “chronically happy,” where...
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