In this episode, Julia and I talk about the moments that we each “realized” that we would be living with cystic fibrosis for the rest of our lives. We are able to point to a specific moment when we both felt a change occur. For Julia it was in first grade, and me when I was about 7 years old. We then go on to talk about some of the things that have led us to recognize the importance of different aspects of treatment. Further, we also discuss why the educational materials available to CF families these days can help with the transition children face through the early part of their lives.
Making it Matter this week is Libby “Lungs for Libby” Hankins. Breathe Easy, Libby.