No one loves to talk about death, but it is something that surrounds people with cystic fibrosis. Really it surrounds us all, but in a world that thrives on precise information, people tie themselves to a number – the life expectancy. It’s no secret how I feel about that statistic, but the idea of death in conjunction with CF is something new for my blog. In this episode, Julia and I discuss how we tackle the stigma that surrounds death with this terminal illness.

Making it Matter this week is Halima Umer because of her amazing work in fashion and cystic fibrosis awareness.