Making it Matter Ep. #50 – Claire’s Place

Claire Wineland, 20 with cystic fibrosis from California, joins the podcast to talk about her life with CF, her charity, Claire’s Place, and all over her advocacy work within the CF community. Most recently Claire has been a featured motivational speaker and tremendous role model for people with, or without, CF. She mentions that she started her charity when she was 13 after dealing with some significant health issues. Claire also touches on some of the things that motivate her as well as her decision not to go onto the Lung Transplant list. Ultimately Claire is your typical, extrodinary 20 year old – bubbly, fun and living life to the fullest!...
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Making it Matter Ep. #49 – #24hrs4cf

Josh Lewellyn-Jones joins the podcast again to recap his 24 hour fitness challenge. He talks about the amazing reach his event had, over 8 million people worldwide, coupled with his platform moving forward. Thanks to the event’s success he is launching Team 24/7 as well as a charity CF Warriors, which are efforts to help motivate people to use exercise to redefine their lives. Finally Josh teases next year’s fitness event, which is an attempt at a fitness world record....
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Making it Matter Ep. #48 – Chronic Rejection

Travis Flores, 26 living with cystic fibrosis, joins the podcast to talk about his journey through life with CF, advocacy, acting/writing/producing, transplant and now chronic rejection. Unfortunately this past fall, Travis was given the news that his life saving double lung transplant was beginning to fail as his new organs entered a state of chronic rejection. Just this week Travis learned that his body is fit for re-transplant and has been officially listed for a second life saving procedure. You can check out Travis’ blog, “Chronically Happy” at www.ChronicallyHappy.org...
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Making it Matter Ep. #47 – Being a Father with Cystic Fibrosis

Jon Whitbred, 36 living with cystic fibrosis and father of 3, joins the podcast to talk about what it’s like to be both a dad and CF patient. Infertility is very common among men with CF, so Jon talks about he and his wife’s path through IVF as well as some of the emotional burden that comes along with it. Aside from being a family man, Jon also works full time, so he talks about balancing life as a CF patient, father and workingman. He says that his routine and support system are invaluable to his health. His advice to other people with CF who might be thinking about starting a family, is to make sure everything is in place, health, finances and support system before taking the next big step!...
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Making it Matter Ep. #46 – The Salt Cysters

Aleeya and Alani Young, 18 year old twins battling cystic fibrosis, and better know as the Salt Cysters, join the podcast to talk about their lives with cystic fibrosis. Recent high school graduates, they discuss some of their ambitions, including both of them heading off to the University of Cincinnati in the Fall. They’ve created the Salt Cysters YouTube channel which aims to raise some awareness for CF, show how they are able overcome adversity and life a healthy lifestyle....
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Making it Matter Ep. #45 – Double-Lung Transplant, Fitness and Cystic Fibrosis in Ireland

Julia and I welcome Luke Doherty, 26 with cystic fibrosis from Dublin, Ireland, to the podcast this week. Luke talks his recent journey through a double lung transplant, which has needed to include chemotherapy treatment for PTLD. To that end, we talk about some of the differences between the American and Irish transplant listing procedures. Luke mentions that despite his failing health prior to transplant, he made fitness a priority in his life and he ultimately credits that to an initial speedy recovery. As you will find out, fitness is a major part of his life, to the point where it serves as a way for him to find a release from the challenges of CF. Luke is still very much in recovery from his transplant thanks to the PTLD, but he is making strides everyday to return to his life as a personal trainer....
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Making it Matter Ep. #44 – International Travel with CF

Today we meet Rachael Russell, 22 living with cystic fibrosis. She is also a recent graduate of Duquesne University and 2x winner of a Boomer Esiason Foundation. Since graduating college, she fulfilled a a dream of backpacking through Europe for a month she will never forget. Rachael discusses packing for such a long trip, working around electric conversion for her Vest, concerns her family and medical team held and ultimately why she took the trip! She mentions that while not plan runs perfectly, sometimes jumping in and taking a risk is all we can do! Check out Rachael’s travel blog here: https://cftraveler.wordpress.com...
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