Making it Matter Ep. #25 – Salty Cysters

Lea Faraone, from the Salty Cysters, joins the podcast today to talk about her life with cystic fibrosis.

Yesterday was my every 3 month CF research appointment ??? For the past 3 years I've been traveling to Boston every 3 months to receive a research medication that has been life changing for me (this is me receiving my 3 month supply). I wish I could share more about the trial itself & all that goes into it, but what I can say is that I am extremely grateful for CF research, this medication, and the amazing CF research team at Boston Children's who has went above & beyond for me & is almost like a second family to me. Without them I would not be where I am today ??✨ — I strongly urge any of you with CF or a chronic health condition who are eligible for research trials to definitely consider taking part in one. The results might not be a cure & can be demanding, but it could end up giving you that little extra kick you need ?? — ❌⭕️❌⭕️Lea

A photo posted by Salty Cysters (@saltycysters) on

At 26, she works as an oncology nurse, and is an advocate for people with cystic fibrosis. She uses the @SaltyCysters social media platform to spread educational awareness about CF. Listen to her discuss her experiences as a nurse, going through clinical trials, talking about transplant with her doctor and finally, her thoughts on the CF Life Expectancy statistic

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