Why I’m Worried about 1500 Cystic Fibrosis Patients in the US

Amy closes up her Drug Development Wednesday column with describing how people with CF who have Medicare without Medicaid, Low Income Subsidy, or another secondary insurance can wind up paying a substantial amount for CFTR Modulators. These folks are DENIED manufacturer co-pay assistance because of a long standing federal law The last two articles I spoke about...
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Darcy’s Blog: When Mental Health Issues Go Unnoticed

Happy #WorldMentalHealthDay!!! One of the best days of the year!! Gunnar likes to describe the three pillars of CF care as: Respiratory Care Gastrointestinal/Nutritional Care Mental Health Care If one of the three pillars are not being addressed, health as a whole suffers. But let me tell you, Gunnar did not always think this way....
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Darcy’s Blog: Guilt and Sacrifice

On last week’s podcast, Tiffany, Lea and I talked about guilt… especially guilt from forcing our support systems to make sacrifices for us. Darcy uses her column today to respond! Gunnar and the Salty Cysters talked about feelings of guilt on the Breathe In podcast last week. According to the trio, feelings of guilt bubble...
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