I always get asked how I am able to stay so optimistic all the time. The truth of the matter is that there are some tough days. There are some really, really tough days – days when I look at myself in the mirror and I’m just like, “here we go again.” The kind of...
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Once college graduation rolled around, I knew it was time to find a job. I had this huge plan of going to law school and becoming a big time lawyer and stuff, but my health sort of got in the way. I drove myself into the ground towards the end of undergrad, as many college...
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CF is often called an invisible disease. It’s invisible in the sense that you can’t quite see what’s going on underneath my skin. If you saw me walking down the street, your first thought might be, “wow that guy looks like a stud!” not, “wow that guy looks horribly ill.” While I may consider myself...
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It was brought to my attention earlier this week that people with cystic fibrosis, specifically young adults, have a tough time making new friends and maintaining friendships that they already have. I am not sure how I feel about that idea as a whole. With that being said, I guess I can understand it. There...
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Yesterday was the thirteenth anniversary of the September 11th terrorist attacks. In 2001, and for several years prior, the Boomer Esiason Foundation headquarters was located on the 101st floor of World Trade Center One inside of donated office space from the financial firm Cantor Fitzgerald. Thankfully, none of the BEF employees were in the office...
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The truth of the matter is that I just don’t have time to be sick, or I guess sicker than normal. Between working at the BEF, coaching, trying to have a social life and a million other things I have going on day to day, there’s just no left over time to deal with being...
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My sister’s birthday is coming up, so I thought now would be a better time than any to write about her. Sydney, my only sibling, is a year younger than me, just about to turn 22. She does not have CF, nor is she a carrier of the recessive gene. Thank God. She just graduated...
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