Darcy’s Blog: New Roomies

Darcy and I are writing complimentary blogs this week. We’re posting hers today and mine tomorrow! Gunnar and I have officially lived together for about a month, and I am here to report that it has felt very….. ordinary. My Mom says that if a relationship is right, living together should feel like home. Thus...
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My Message to the St. Louis University School of Medicine Class of 2019: Listen to Your Patients!

This past weekend I was honored to deliver the 2019 St. Louis University School of Medicine Pre-Commencement address. My very first pediatric doctor at Cincinnati Children’s Hospital, Robert Wilmott MD, is now the acting dean at the SLU School of Medicine and extended the invite to me not long ago. I so very much appreciate...
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Lea Faraone Was an Amazing Person

Lea slid into my DMs about two and a half years ago asking if I’d be willing to help her with a video she was making for Tiffany Rich’s transplant recovery. Lea’s best friend was in a dire situation and all she wanted to do was help. Little did I know that would be the...
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What It Means to Partner With Patients and What Cystic Fibrosis Foundation Should Do About It: My Final Thoughts From NACFC

I LOVED tuning in to the North American Cystic Fibrosis Conference live stream this past week. It was amazing to be a fly on the wall listening to everything that’s going on in the world of cystic fibrosis, and not just the medical research! Some of the qualitative programs were just as impactful as the...
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