Lea Faraone Was an Amazing Person

Lea slid into my DMs about two and a half years ago asking if I’d be willing to help her with a video she was making for Tiffany Rich’s transplant recovery. Lea’s best friend was in a dire situation and all she wanted to do was help. Little did I know that would be the...
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What It Means to Partner With Patients and What Cystic Fibrosis Foundation Should Do About It: My Final Thoughts From NACFC

I LOVED tuning in to the North American Cystic Fibrosis Conference live stream this past week. It was amazing to be a fly on the wall listening to everything that’s going on in the world of cystic fibrosis, and not just the medical research! Some of the qualitative programs were just as impactful as the...
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Am I Angry?

Maybe. Over the course of the past few years I’ve noticed that I have been called angry, or confrontational, more and more frequently. Confrontational is a fun one, I think. I suspect confrontation is the behavior I show as a result of being angry, an emotion. In a way I think being angry is a...
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